Making the Days Count for Willow

Willow is a brave 5 year old girl facing a life of difficulty with a smile on her face. Willow has muccolipidosis type 2, a rare genetic condition that affects her muscles, heart, lungs, development and just about every other part of her life you can imagine, including unfortunately, life expectancy. Yet no matter how many hospital or therapy appointments she attends she continues to find joy each day.

Through this tough journey, we made the decision that we would not count the days, but make the days count. However with rising costs of living it is becoming harder to treat her to experiences outside her daily bubble. It is only with the continued support of our amazing wider community that these continue.

Funds raised goes towards making a difference in Willow's life; from giving her experiences that she wouldn't otherwise get to experience such as zoos (she loves animals), travelling to see family, experiencing new foods, right through to things like custom equipment that help make her life more inclusive and complementary/or alternative therapies not covered by our health system but make huge difference in how she can handle day to day.

We know times are tough for everyone out there so are under no expectations of donations, but every dollar is a blessing we others would not have to give and is appreciated beyond words.

Previous funds raised have allowed us to; purchase an ozone therapy machine, add activities such as the zoo to starship visits and experience snow and more.

https://givealittle.co.nz/cause/help-willows-journey-with-muccolipidosis