Wow... thank you!!
17 December 2021Hey everyone,
We just want to say a HUGE THANK YOU!
We are seriously overwhelmed with the crazy outpouring of love on our family, especially at this time of year! We have been so incredibly blessed 🙏
Update on Dee:
FND diagnosis retracted after a huge lesion was found on his spine, running from nipple line to base of spine. They missed it because it was so big and normally look for small abnormalities. He has responded extremely well to the high dose steroid treatment and regained some movement in one leg and torso!! (We havent seen this for about 2 weeks now!) Still waiting for next steps, but they have said they will send him to Burwood spinal unit (although, honestly, you can't really believe anything until it is actually happening, because he was supposed to go there last week 😆)
If you are interested, keep updated on this link