22month old Inara deserves a chance to eat and free her from feeding tube.The No Tube clinic in Graz Austria has a 96% success rate of wean
Nationwide
Inara's parents feel this is the only hope to get their wee 22 month old girl eating and to help improve her overall health. Tube feeding her on Goats milk alone will not give her the calories she needs to continue to grow. Inara has no physical disabilities her quality of life would improve if she could only eat.
Providing coffee/playgroups in the neonatal unit and in the community, Our community play group has been very welcomed by our many families that attend.
We also arrange morning teas up at the neonatal unit and hope to do suppers,also we supply knitted items.
We put on a Christmas party for any of our neonatal families
Update for 01/10/2013 1 October 2013
Thank you to all that helped Inara!! Even though we did not raise a lot through this cause. The Neonatal Trust was able to help this family in getting to the feeding clinic in Austria with the amount needed. I am happy to say that Inara has been tube free since March 2013 and no longer needs to drag her feeding pole and machine around with her and is enjoying her new experiences with textures and tastes of food. There is a NZ wide petition Tube Wean NZ out there now to see if these tube dependent children can get the much needed treatment here in New Zealand. Tube Wean NZ is a campaign for change. This has been established due of the lack of knowledge and support for tube fed children and their families in New Zealand. More funding needs to be put into getting these children eating like they should be. Please take a look at their facebook page https://www.facebook.com/tubeweannz Any donations made will still go into helping other families needing support by our Registered Charity The Neonatal Trust (Canterbury)
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.