I need two more pumps for my new mickey button, help with medical supplies and the constant hospital stays and visits.
Auckland
My name is Nevaeh my friends and family call me Nev or Noodle. I am 9 years old. I have Noonans Syndrome, Gut Dysmotility and many other medical problems. I have been in hospital for a big chunk of my life. This time they changed my chait tube to a new mickey button this connects to my bowel. My other mickey button is so I can get food and drink as I can't eat anything through my mouth as it hurts my tummy. So now instead of two pumps I need four! These pumps cost a lot of money which mum can't afford.
If people want to follow my journey I have a facebook page Nevaehs Wonky Tummy. Even though I hurt all the time I am cheeky and fun and I love life.
Thank you for any help you can give me.
I am a very close friend to the family. I caregiver for Nevaeh.
Two new pumps and medical supplies.
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