Well time does fly by quickly.
I started on a new drug Cabozantinib on the 6th of July, by the 20th my Oncologist told me to pause this medication, I was suffering from dreadful side effects! a rash covering my head and torso, also heartburn which made it difficult to eat and drink.
With more medication we have now got these side effects under control.
I had another CT scan on my head and body on the 20th July to check the pneumonia and to get an update on what's happening, the good news was "a small reduction detected in the size of the primary tumor and a mild reduction in the size of the lung metastasis and lymph nodes on the chest. The neck lymph nodes are the same size.”
Surprising the scan of the brain was normal🤪.
Which is promising considering i was only on the new drug Cabozantinib for 13 days.
I’m now taking Cabozantinib for 2 days and missing a dose on the 3rd day. I seem to be tolerating this new dosage at the moment.
I’m looking forward to my birthday in August, we will have all the family up for a long weekend of fun. (i have organized a working bee for them.😀😀😀😀).
Just wanted to say a massive thanks to everyone who has donated to my treatment, it is very humbling, it is so hard for me to have a page like this but every bit helps.
A special thank you to Tracey Taylor🌸 for her patience, love & endless encouragement and setting up and managing this page.
All your ongoing love and prayers are appreciated x
Norm
