Back to page

A MRI for Nick

  • Treatment Update

      28 March 2015

    Hi Everyone, I just want to post an update to ensure full clarity on what's happening with the raised funds. At this point I have an application in with the MS treatment commitee for approval to start the MS drug Copaxone, The doctor was 50/50 on whether they would approve without the second MRI so waiting to hear on that. They meet every 2 weeks. If they approve the treatment without the second MRI I will be talking to you guys about the funds, if people are not happy for them to go towards other facets of treatment I will arrange refunds, otherwise I may look at investing in a replacement fridge as our small fridge has the fridge at the bottom and is very small, with Copaxone I will be recieving injections which need to be refridgerated and I want them to be out of reach of my kids. But thats getting ahead of ourselves anyway. Just wanted to ensure everyone knew where we are at and that I am committed to ensuring the raised funds get used as intended. Thanks, Nick

      0 comments  |  Login to leave a comment

  • MRI Update

      11 March 2015

    Who would have known booking a private MRI could be so much hard work. I've been going round in circles between various people the last few days... and I have some answers..odd as they may be. Once I finally got hold of the right people at the DHB I got a response that now they'll try and pass my qualifying submission to the committee without the second MRI, this is after waiting a month for the public MRI they told me I required to be considered... Frustrating... Anyway, they've submited my application now and awaiting further info, I expect they'll come back and say they still want the second MRI at which point I am primed to go private and get it done thanks to all of you.. Sorry everyone for the miscommunication, I assure you I am just as annoyed. Should it come to not needed another MRI now I will offer you all a refund of your donations, Any money that is not refunded will be going into a dedicated account for my healthcare costs etc, I expect I will still be required to have periodic MRI's down the track etc.. Thank you again to everyone who has donated, I am still reeling from the amazing response and it has really given us a mental lift knowing so many of you care and are here to support us. I'll keep you all posted on the red tape.

      0 comments  |  Login to leave a comment

  • WOW!

      8 March 2015

    Wow, Not even 10 hours in and we're most of the way there, I can't thank those who have donated enough. I can't believe the amount of generosity and support out there, its all a bit overwhelming that so many people are prepared to help. It means so much to not only me, but my whole family. It takes a whole lot of stress out of the situation knowing we have this opportunity and that in itself is its own means of treatment. Stress + MS = Relapse.. So again THANK YOU THANK YOU THANK YOU!

      0 comments  |  Login to leave a comment