I am ollies mum and bone marrow donor
Wellington
My 5 year old son Oliver Snow King was diagnosed with a really rare form of leukemia just over a year and a half ago when he was 3, so rare we had to search worldwide for answers. After arriving at Wellington hospital on the 15th of December 2017 and being flowen by emergancy flight from our home town Wellington to Christchurch hospital on the 16th of December where the blood cancer specialists are, having to leave with nothing and leaving my other two children behind so suddenly thankfully with instant family support and after numerous tests revealed the rare form of Chronic Eosinophilic Leukemia (nos) New Zealand apparently hadnt really come across this and so the specialists put their feelers worldwide.
It came that the treatment of a bone marrow transplant may work to help save him as there is no actual cure.
We were flown to Auckland Starship hospital to have a bone marrow transplant and i his mother Jasmine would be the bone marrow donor on the 21st March 2018.
I am trying to emotionally and financially support Oliver and his two older sisters aged 13 and 8 so
A mother whom i met at the Christchurch Ronald McDonald House in a similar medical position with her son advised of reaching out to give a little.
I started to set a page up but didnt get round to completing it as there never seemed to be spare time to even do that with our lives turned upside down and after a year and a half of fighting all the graft vs host complications that hes battled strong through its been taking a huge toll on his body.
He has been so strong so far and such a little fighter and just want to be able to support ourselves with also being able to give him any little extra we can to brighten up as many days as possible for him and his sisters and hopefully find a way of providing my family and easing a little of the stress upon us and to give ollie all he deserves especially after just recently we received results of graft in the lungs which has no treatment to cure but a treatment to supress to prolong him as long as we can and hope the graft decides to rid itself from him on it's own but the doctors have advised to be realistic as this has the high outcome of not in end survivable but we hold on to that chance of a miracle because he deserves it and we need to make every moment count.
We are trying to find accommodation as terrible circumstances have left us in emergency housing and on waiting lists while trying private and all house items damaged in a fire where our belongings were stored so we are starting from ground zero but as we need ollie to come to where we can call home to give him the best of everything we can and beds to sleep in etc once find a home to rent and that someone will choose us to tenant it and that due to his illness has to be dry clean and warm to better his chances has made it even harder but we are fighting through every day hoping that day will soon be here so am trying all i can to find ways that we can get started back into life and make the most of every day.
I am ollies mum and bone marrow donor
To make every day as best for Oliver and to help us with our accommodation struggle with restarting from the bottom.
Thank you to all whom support us 22 April 2020
This is so hard to say but you all deserve this update. We lost Ollie on the 4th April 2020 I miss him so much it hurts so much it still doesn't feel real. I'm so broken he was so strong and brave and deserved so much more for his life. I will never let go my baby xxx
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