Hi it’s Rachel here, Otis's mother
Firstly thank you from the bottom of our hearts for all the generous donations. I want to be completely transparent and let you know where this money had been spent and will continue to be spent.
Otis has been battling this beastly cancer now for 14 months. We are grateful for everyday as we were only given 3 months back in Feb 2022.
Without your donations we wouldn’t have been able to take time off from our jobs to be with him in hospitals for weeks on end. It has gone towards scans for private hospitals, visits to private surgeons, Genomic testing overseas for drug trials, alternative treatments and medicine and general day to day living.
I understand that everyone is struggling as the cost of living increases so we only ask that you share the page and give what you can.
Okay…… 10 days ago Otis started to have some nasty Lower back pain with the constant need to pee but then not being able to go fully. We met with his oncologist who gave him an external examination. She found significant growth so ordered an emergency scan. We got the result’s on Friday and unfortunately all of them have grown back with one so big that its now blocking the two tubes that feed urine from his kidneys to her bladder. She (oncologist) has stopped his chemo as it’s obviously not working and we’re waiting for a surgery time where they’ll insert two stents into these tubes to help the flow.
Our only hope now is to have this surgery and then find another chemo drug that he hasn’t already had and hope for a clinical trial. But until the kidneys are functioning properly he can’t start anything yet. These new drugs will come at cost that we’re not sure of yet. We started a small business that we were suppose to launch the week Otis was diagnosed and this has been ticking along nicely but now with the latest news we are only just doing what we can when we can.
Otis oncologist asked him on Friday if he was ready to have a chat to the end of life team. His reply was “Ummmmmm thank you, but I’m not ready to die yet” this as a parent was heart breaking to hear but our boy is a fighter and we’ll fight for his life for however long he is willing.
Always hopeful and forever faithful xx Rachel
