Our little boy has the fight of his life ahead after 3 major brain surgeries within 14 days. He is super strong and brave.
Auckland
Pete and Alyse’s little boy Aiden, aged 15 months, was unexpectedly diagnosed with a Posterior Fossa Ependymoma on the 7/6/2024. This is a rare primary brain cancer, and he was airlifted to Starship from Whangarei. Aiden had an MRI which showed a large tumour, alongside this came the complex location of it. After an 8 hour surgery, Aiden began having frequent seizures over a 48-hour period. A 2nd surgery was required where a drain was placed to help the fluid/pressure build up in his brain, and then following this has had a third surgery to add a permanent shunt in to his brain.
Aiden is currently spending time in Starship recovering. They have held off with this page in the hopes that they would be back home by now, but with the next part of treatment, their little family will be in Starship for months. Aiden is now facing a long course of Radiotherapy to beat this cancer which after recovering from his 3 surgeries, Radiotherapy will begin to give him the best chance at beating this. The specialists in Starship are currently deciding if Florida or Auckland will provide him with the best treatment. This is due to the cancer being in such a difficult part of the brain to treat and his young age.
Pete and Alyse have had to leave their farm which is 4 hours away from Starship and rely on family to care for the farm as get ready for calving. Aiden will need 24/7 care and we wait for Aiden’s little sibling to arrive in October.
I am one very proud sister to Peter and Alyse (Aiden’s Mum and Dad) and Aunty to one brave little Aiden
This will help aidens family get through the biggest fight of his life. It will be used to support Aiden throughout his treatment, any care afterwards and to support Pete and Alyse
Update of our little trooper 7 August 2024
Hi everyone.
Aiden has started radiotherapy today(7/8/2024) first round was expected to take a little longer due to having to complete the set up process,
He had had some issues with his shunt,that has cased delays in starting the process her in nz
Unfortunately the process for Aiden to head to the USA has taken to long and we have had to forge ahead here in nz.
At the most recent MRI it does appear to show some potential tumor regeneration, so that also is a factor in making a start here in nz for radiotherapy.
He has healed nicely from all his surgery's and I making good ground back, he still has weakness on his right side off his face this includes his tongue so it is affecting his drinking and swallowing.
He is fighting fit going into the next 29 treatments and we do expect he will be very tired and to see other side affects.
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