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Our Boy Noah

  • Update 20th December

      20 December 2025
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    Kia Ora,

    Noah’s bone marrow transplant has been completed, and the recovery/engraftment phase is now underway with monitoring progress closely.

    Thank you to the haematology team and nurses for their incredible dedication and support they are giving to Noah & our Whanau at this time.

    Thank you to our Whanau, friends & communities, for the ongoing support.

    Nga Mihi Nui ❤️🤍

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  • Update 4th December 2025

      4 December 2025
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    Kiaora Whanau & Friends,

    We wanted to share an important update:

    We have been blessed with a donor for Noah’s Bone Marrow Transplant happening this month.

    After all the testing, preparation, and planning, the medical team has given the green light. It’s a big step, but one we’ve been working towards with hope and determination.

    The next phase will involve close monitoring, treatment, and rest.

    We would like to take this time to focus all our energy on our boy as he faces this next part of intensive treatment.

    All the strength, courage & loads of aroha and healing for you Noah❤️‍🩹

    Nga Mihi Nui

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  • 3rd November update

      3 November 2025
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    Kia Ora

    We are grateful to share some good news - a suitable bone marrow donor has been found.

    This is a big step forward, this marks an important milestone in the treatment process for Noah.

    The next stage involves working closely with the medical team to prepare for the procedure over the coming weeks. It’s a careful and closely monitored process, and the medical team will be with us every step of the way.

    Thank you to everyone for your continued prayers, love & support.

    Thank you Nic & Troy

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    • 03/11/2025 by Barbara

      That is amazing news, so so good. Well done to you all x Barb Luxon

  • October 15th

      15 October 2025
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    Kia Ora Whanau & Friends,

    Not much to update this week, Noah is still having 3 appointments a week for his checkups and top ups. We are still in the waiting game for his bone marrow transplant.

    One day at a time.

    Nga Mihi Nui

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  • 29th September

      29 September 2025
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    Kia Ora,

    Update 29th September

    Noah has 3 day visits a week for treatment and today he had another top up of Platelets.

    The most significant development is that preparations for a bone marrow transplant are now underway. We’re currently in the donor matching phase — a delicate process that takes time and precision. There’s cautious optimism, and we’re hopeful a suitable donor will be confirmed soon.

    Behind the scenes, your generosity has helped us immensely. We are able to stay by Noah’s side — we couldn’t do this without you. We’ve read every message, every comment, and felt every bit of love you’ve sent our way. The kai parcels & drop offs have all been amazing, the support has really shown us what kind of person Noah represents himself in our communities. (Message from Nic & Troy)

    Our boy is walking most days, and moving his Tinana (body) in the home gym. Eating well, as he is on a strict diet, he is still feeling fatigue and exhaustion but still manages his days well.

    Nga Mihi Nui

    Added some new photos

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    • 30/09/2025 by Barbara

      All the best Noah, you are doing amazing, keep up your strength and I hope you recover in no time. Barb Luxon

  • Friday 19th September

      19 September 2025
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    Kia Ora

    Noah has had a busy week, he is currently dependent of Blood & Platelets transfusions.

    Today he is having his 3rd round of PNH treatment.

    Surrounded by a team of doctors & nurses who have been a supportive strength to us.

    We are still in the process of waiting for bone marrow transplant.

    Noah Continues to show determination and courage and takes things all in his Stride. He is still moving his body with walking the dog and having light workouts in his home gym. Proud as boy.!

    Nga Mihi Nui

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  • 2nd PNH Treatment

      12 September 2025
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    Kia Ora Whanau & Friends, Noah is having his 2nd round of PNH treatment today. We are so proud of him, calm energy and is taking it in his stride 🙏

    Win the day our boy.! #WeOn

    Nga mihi nui

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  • Nic & Troy

      10 September 2025
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    We Would like to acknowledge Nic & Troy for showing their Son the unconditional love and support over the last 3 weeks at what’s to come.

    It hasn’t been easy to adapt to the medical condition Noah got diagnosed with 3 weeks ago and it has been life changing for the whole Whanau.

    We send Nic & Troy so much strength and love to continue the amazing job they are doing.

    Love you guys

    Your Whanau xx ❤️

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    • 10/09/2025 by Barbara

      So stoked for Noah and the family for the help and support given by all and so pleased Pharmac are able to help, what a huge relief. Take care, Barb Luxon

  • Wednesday 10th September

      10 September 2025
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    Our boy is showing so much resilience an incredible strength, he is teaching us all about these important moments in life.

    Update: Tuesday 9th September Noah was allowed to go home under strict hospital guidance. After 3weeks in hospital, he will do PNH treatment every Friday at Auckland hospital, Monday & Wednesday blood or platelets transfusion and check ups.

    We are still waiting on results for Bone marrow transplant.

    Noah is setting goals while getting treatment, walking on treadmill & going on the bike at the hospital gym keeping his body moving is so good for him.

    Lots of resting, and sleeping.

    Please be respectful and mindful of Noah & whanau as Noah has no immune system so please stay away if you are sick.

    Our boy is so patient, calm and inspiring 🙏

    Nga Mihi nui

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  • Friday 5th September

      5 September 2025
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    Our blessings have been answered, Our boys PNH treatment has been accepted by Pharmac today, we are so so blessed. They are moving pretty fast and are going to be starting that now.

    Funds raised will now go towards Noah & his Whanau for medical related costs and to help support them with the uncertainty of his mum & dad going back to work during this difficult time.

    Thank you for the on going Aroha

    #WeOn

    Nga Mihi

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  • Friday 5th September

      5 September 2025
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    Friday 5th September

    Our Boy has had a big week, he has settled into the hospital and has everything he needs.

    Update: we are waiting on pharmac to give the green light on the right medication he needs which we have been told it is very expensive. (Why is there a price on helping someone) the medication is for his PNH. He also has still been having Blood transfusions & platelet transfusions to keep him at bay but we really need this PNH medication.! Before any other steps we need this first.

    Each day at a time as these things take time,

    Nic & Troy have been doing such an amazing Job with keeping our boy comfortable.

    We will give another update next week.

    Nga Mihi

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  • Tueday 2nd September

      2 September 2025
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    Noah is now at The Auckland Haematology Unit. From there he will settle in and we will find out over the next couple of days what everything is going to look like for him.

    He is in such good spirits and taking each day at a time. Our boy has so much Resilience and is ready to take on what is to come his way.

    Feeling the Aroha from so many and we thank you all so much for the support for Noah & Whanau.

    They are feeling very overwhelmed by all the generosity from you all.

    Once we know about what Noah’s treatment looks like we will update the page.

    Nga Mihi

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    • 02/09/2025 by Barbara

      All the best Noah, thinking of you and the family at this time. Barb Luxon