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Our daughter has Ehlers- Danlos Syndrome with failing stomach, please help us

Cause page created in the Health category by Leanne Umbers

$4,563 donated
Given by 31 generous donors in around 8 months

Raising funds for our daughter to see a Gastro specialist in Wellington. He specialises in Ehlers- Danlos syndrome

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  Hawke's Bay

Our beautiful daughter Caitlin is 18 years old. She has Ehlers -Danlos Syndrome which was formally diagnosed in June this year, we travel monthly to Auckland to the only specialist who provides treatment in New Zealand.

Caitlin leads a life filled with pain despite many trials of pain relief, sadly frequent dislocations are normal and we are saving for a wheelchair to help minimise dislocation.

Our finances are at their limit and we are asking for help as her stomach is now failing. We have a referral to see a specialist in Wellington about her condition, he too has full understanding of Ehlers- Danlos and the effects on the stomach. We understand tests will need to be done and we simply can’t afford this extra expense.

It has taken 8 years of hospitals, specialists and support to reach where we are today.

We are thankful to everyone who has helped us through this difficult time, We are now asking for financial help to provide Caitlin with ongoing treatment.

Please help us, she has been through so much and is so loved.


Use of funds

Funds raised will be used to pay for ongoing treatment and a wheelchair.

This means we can continue her treatment with the rheumatologist in Auckland whom we can only see privately but also see the Gastroenterologist.

Latest update

Thanks everyone  3 May 2020

Posted by: Leanne Umbers

Thankyou to everyone for your continued support.

Caitlin last night created a Give a little page for her Dad. We are needing to raise $120,000 for him to receive Immunotherapy treatment.

Read 6 more updates  |  Share this update

Latest donations

Karen on 03 May 2020
Deidre on 26 Jan 2020
Keeping my promise to donate.
Anke on 30 Dec 2019
Thinking of you Caitlin Wishing you all the best and lots of strength.
Alexis G
Alexis G on 24 Dec 2019
Merry Christmas Caitlin
Kya on 23 Dec 2019

Who's involved?

Leanne Umbers's avatar
Created by, and paying to a verified bank account of, Leanne Umbers

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.


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This page was created on 1 Dec 2019 and closes on 2 Dec 2020.
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