Update.
2 November 2023Thank you to everyone for your donations, you truly are wonderful people and it means the world to Camila and I. Seeing your love gives me more energy for the fight and holding off those depressive thoughts.
Thanks to your donations I was able to start taking regorafenib just over two weeks ago. Although I've had more complications and hospital time with my bile ducts the new drug is being tolerated well. I think it is only affecting my voice and possible giving me some additional fatigue.
I've had more ct scans which show more disease progression, but these are for the bile duct issues and it is too early to know whether the regorafenib is working at all. Disease progression is expected. I have other week before a week off and then start the next cycle which your support has also already funded.
I've lost 5kg over the last couple of months, but I've been feeling good the last couple of days (despite being in hospital in Whangarei), have been able to eat a lot more, and I think I've finally put a kg back on.