Payton Maata’s road to recovery
Auckland
Sometimes life can really suck !
On October 29th 2021 our beautiful healthy 13 year old sister Payton Maata woke with a headache and in the blink of an eye our lives changed.
Payton suffered a brain bleed from a mass that has grown undetected since birth and the following week she suffered a stroke leaving her extremely vulnerable in PICU(paediatric intensive care unit) at Starship Hospital for 8 weeks monitored 24/7
The bleed and stroke have affected both sides of her brain, significantly on the left side of her body. At this stage we are unsure of the full extent of the bleed and stroke effects. My sister is known for her strength, fight and determination and has already started showing us how it’s done.
Payton is out of PICU and working extremely hard and consistently in her rehabilitation and is making progress 1 day at a time but is extremely exhausted and frustrated.
This will be a long and difficult journey for us all including Payton, involving intensive work to learn how to talk with her family and friends and how to use her body again.
We all love and admire Payton and sometimes know it can be hard to know how and when to ask for help.
I am Payton’s Sister
To help support the family (Mum has resigned from work as Payton needs round the clock care) and whatever Payton needs throughout this journey
FINAL UPDATE 2 July 2022
Thank you all for the support we have received from everyone who has followed Payton on her journey.
This will be our last update for the page as we process the information we received from her neuro surgeon.
On a positive, Payton’s rehab journey has continued to progress at a significant rate and surpassed expectations given to us since 29th of October 2021. The AVM has made positive developments and the shunt is performing it’s job. We are so thankful for her perseverance and drive and pray for further greatness.
Unfortunately, after the positive feedback we were given the options for treating her AVM. The location of this is close to her brain stem and nerves that surgery has extremely high risks of loss of life or further damage to her brain stem and/or losing her ability again to swallow, talk and eat. If you decide not to go ahead with surgery, the chances of another rupture are extremely high with the same possible outcomes.
We are stuck and do not come know how to process this information. After roughly 9 months our daughter has recovered and continues to recover from this horrible day and the thought of further harm or not having her here with us is unbearable! BUT if everything goes well our beautiful young lady will continue to do great things and all her dreams will come true.
Payton has voiced her opinion and does not want any further brain surgery’s but is also petrified of another rupture. My heart breaks that such an amazing individual has been given so much to deal with.
While we talk through our options, please keep us in your prayers and remember to be kind! Life is precious and our worlds can be turned upside down in a blink of an eye.
OHANA means family. Family means nobody gets left behind or forgotten. Lilo and Stitch
Thank you for your love and support truly means a lot 🖤
Thank you for your love and support truly means a lot
Thank you for your love and support truly means a lot
Thank you for your love and support truly means a lot
Thank you for your love and support truly means a lot
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.