Back to page

Please help 2 year old Louie kick cancer's butt

  • A step in the right direction ❤️

      23 February 2021
    Main image

    This is an update from Louie’s mum, who posted on Facebook today. Thanks again to you all for your generosity and support.

    Lots of love xx

    It’s been a while since I did a Facebook update on our Louie. That’s because from May 2019 until November 2020 it was pretty much consistent bad news that I wasn’t willing to accept and saying it “out loud” was too hard, so I tried not to. But In November we got the first good news in a year and a half, despite being resistant to all the chemo they’ve thrown at it and the 6 weeks of radiation his tumour shrunk by 23%. It was unbelievable and honestly I just felt numb to it because it seemed too good to be true. He has been doing amazing since just after that scan, we’ve been able to take away the harsh chemo that requires a whole day of fluids with it, and he’s been able to be home a whooooole lot more than he has been since diagnosis. We got to go camping and have gatherings with friends and do “normal” stuff and he has blossomed into a social, and (mostly) happy little boy. A year ago I was lying in hospital beds next to him, broken and devastated by yet another blow and hearing words like palliative and prolonging life and wondering at what point the chemo was going to stop keeping the tumour stable and take my baby away. And then today we got some more good news after his latest CT scan, it’s shrunk again. Not as dramatically, but shrinkage is shrinkage and we will take this win and run with it ❤️ I know what’s working and it’s thanks to a few people for pointing me in the right direction I am finally feeling like we can breathe. We are not out of the woods and we still have a huge fight ahead of us but for the longest time we were told we couldn’t win and now maybe we can. I’m so proud of my Dino obsessed, hot chip fiend and I’m also so proud of Molly because this shit is rough and she’s been pretty amazing throughout.

      4 comments  |  Login to leave a comment

    • 24/02/2021 by Robyn

      Thankyou for the update Louie’s mum - I am over the moon for you!

    • 24/02/2021 by Anne

      What good news, I'm so relieved for you all. Lovely photos of Louie, what a happy little boy he is. I have been thinking of you and wondering how Louie is doing, so thank you very much for this update. Let's hope that this improvement continues. Love and hugs to Louie and all your brave family xx

    • 24/02/2021 by Eryn

      This is such wonderful news. Your whole family are still in our prayers. Great strength and har work young Louise, we are all so proud of you.

      Regards

      Eryn Jacobsen

    • 24/02/2021 by Naseri

      This is AWESOME!!! much love from my lil family to you Louie - Declaring Love , grace and healing all over you bubbah. You are doing soo good , what a great trooper you are. I know there are great things in store for you , trusting in the process and the miracles to shower over you and your family. Blessings upon blessings to your parents and family. Know that you have a community praying storms and mountains of healing and blessings over you Louie and all that you are and do.

      Love you lil Man

      Naseri Mataia

  • Update on our Louie

      16 January 2020
    Main image

    Hi all,

    It has been 9 months since Louie was diagnosed and about 5 months since all of you generous people donated to our page. Again we thank you so much! I thought I would give you an update on the huge fight Louie has been battling.

    Louie has been in a bigger fight than we anticipated with many complications, infections and heartbreak along the way. Too many to list now. The biggest blow to date was in November when we found out that all the chemo and radiation Louie had undergone had not been working to shrink the tumour. Whilst there was evidence of a small amount of death to this horrible and large tumour, it had still continued to grow. This is very rare and shows just how aggressive Louie’s cancer is. Some options were given to Maxine and Matt and they decided we cannot give up yet and Louie started a very strong chemo in early December. Through it all he has been such trooper and he still has his loving, kind and beautiful spirit about him.

    On Tuesday this week, Louie had another scan. As you can imagine the anxiety levels of our family were through the roof. All we have had since Louie’s diagnosis has been bad news after bad news. However, on Tuesday afternoon we got a glimmer of hope we had been begging for...

    The tumour has shrunk!!! Granted , not by much but this is the first time we’ve had any form of good news from a scan. The death of the tumour looks a bit less but the oncologist has said that’s not really a problem because a little bit of shrinkage is what we want. It doesn’t mean too much yet but hopefully this is the start of better news. Louie will continue with this heavy duty chemo and also add back in some of the chemos from his last protocol, so there are weeks and months of a brave battle ahead for him still.

    We will take this small victory and hopefully it turns into a big one!!!

    Thanks again for keeping Louie and his family in your thoughts. We hope

    To update you again in a few months with more positive news.

    Lots of love from Jess and All of Louie’s Family xx

      0 comments  |  Login to leave a comment

  • Evaluation Week

      17 July 2019
    Main image

    Hello lovely people,

    Below is An update from my sister on how evaluation week is going - it has not been the news we had hoped for. We are very heartbroken but still fighting forward!!! So please keep Louie in mind and send your positive vibes to him or include him in your thoughts to whom ever you may pray to xxx

    Louie had a CT on Monday and an MRI yesterday to see how he is responding to the chemo. Unfortunately it showed pretty significant growth. It’s pretty rare for this kind of cancer not to respond to the first line treatment so the doctors have had to come up with a new plan over night. We have been admitted to starship again for the next couple of days and Louie has started a new chemo already this evening. His radiation has now been moved up and will start on Monday. That has taken the option of proton therapy completely away so we will not be travelling to America for treatment.

    This is obviously not the news we thought we would be hearing this week. It’s been a rough couple of days. We feel better that there’s a new plan and we have to stay positive that it will work and kill this stupid thing that’s taking up our babies entire abdomen now.

    The doctors will be keeping a close eye on his kidneys as the new growth has started an obstruction and they are slightly dilated.

    Please keep up the prayers and positive vibes or whatever you believe in.

    He is still smiling and seems to be feeling ok.

    Thank you again for all of the support. ❤️❤️❤️❤️

      2 comments  |  Login to leave a comment

    • 18/07/2019 by Nina

      Hi there, I can't even imagine what you all must be going through. Just so wrong :o( I'm sure you're getting unsolicited advice left, right and centre and I'm sorry to be one of those people too but just wanted to mention that I've just finished reading two books by Dr Gundry (The Plant Paradox and The Longevity Paradox) and there is compelling information with regards to quite extreme (and surprising) dietary restrictions to help the body heal itself. I thought it couldn't hurt to let you know in case you're interested in having a look. I hope you have some good news soon. Our hearts are with you guys.

    • 14/08/2019 by Anne

      Hello to you all. I think of Louie every day as he's the first thing on my FB page, and I hope and pray you have been given more positive news and that the new plan is helping. Such a gorgeous little boy and I feel heartbroken every time I look at his smiling face. Sending all good wishes and lots of love and hugs to Louie and his parents. Anne xxxx

  • Tentative Yes from the USA

      7 July 2019
    Main image

    With a tentative yes from the USA (awaiting a new scan and a decision re Louie’s risks involved with travel) it would be amazing if you could help share the word as it could be as soon as 3 weeks that my sister and Louie would need to go!🙂 We have some fundraising initiatives coming in the next week or so but anything you and your wider network could do to help us spread the word that would be amazing!!

    Lots of love #teamlouie

      0 comments  |  Login to leave a comment

  • Thank you from the bottom of our hearts!

      3 July 2019
    Main image

    A week into our givealittle journey and we are in awe of the kindness and generosity we have received ! Your kind words and well wishes have really lifted The Bell’s and our extended family’s spirits.

    Louie has had a hard week this week with a big chemo session on Monday and feeling pretty unwell after that. Then tonight he has been admitted to hospital with a fever that his dr’s want to keep an eye on. He is still being a strong little soldier as are his mum and dad whose strength continues to inspire us.

    We are just blown away by the donations we have received to date and all offers of love and support.

    We wanted to take a moment to express our appreciation and to thank you from the bottom of our hearts for everything!! We will keep you in the loop as we hear back from USA hopefully in the next few days and of course on Louie’s journey from there! Any help to keep sharing Louie’s story is greatly appreciated!

    Lots of love #teamLouie xx

      0 comments  |  Login to leave a comment