Please help 2 year old Louie kick cancer's butt
Gorgeous 2 year old, Louie Bell has been diagnosed with an aggressive, rare cancer - Embryonal Rhabdomyosarcoma, we would love your help!Auckland
My gorgeous 2 year old nephew, Louie Bell has been diagnosed with a rare and aggressive cancer called Embryonal Rhabdomyosarcoma. Roughly only 3 cases are diagnosed a year in NZ.
From playing at his sister's 4th birthday party on Sunday 28th of April to sudden abdominal pain and distress on the Monday, biopsy's and MRI's throughout the week to a cancer diagnosis on the Friday- it all happened just so fast. We as a family have been living in a state of disbelief that this full of life, beautiful, kind hearted boy is battling this horrible disease. The past 8 weeks has seen the Bell family's world flipped upside down, but even through adversity this beautiful family's strength and love has never shone so bright.
Louie has a large tumor located around his bladder, prostate which also pushes back into his spine. The tumor is blocking his urethra so he has a permanent catheter which as you can imagine has it's own discomfort and challenges for a 2 year old little boy. Sadly surgery is not possible due to the risks associated with the location of the tumor. Louie has a fighting chance undergoing an aggressive treatment plan that has started already. He is administered Chemo weekly which will continue for at least a year, as well as radiation therapy.
My sister Maxine (Louie's mum) and brother in law Matt also have a 4 year old daughter Molly whose world has also changed overnight and whom we are mindful to help keep her life and spirit as happy as possible. This is a beautiful, loving and hardworking family who have been dealt a very tough and unfair hand.
By raising funds for The Bell family we hope to be able to take the pressure off them as a household and to hopefully put money towards Proton Radiation Therapy which is not available here. Louie is yet to get approval for this but if he qualifies it is available in America. He is getting amazing care and treatment here in NZ at Starship, we are VERY lucky in that regard, we just want to have all options open and bases covered if we can. Based on the location of Louie's cancer, proton radiation therapy lowers the risks and long term affects on Louie as it can be more targeted compared to standard radiation therapy . These risks include incontinence, infertility and impotence, as well as the standard radiation risks of future cancer's developing.
Other children with Louie's type of cancer have had amazing results with this therapy and we would love to be able to have this as an option to us, however it is not cheap at an estimated $345,000 NZD.
We would like to use this platform to also thank the beautiful support from friends and family that have rallied around the Bell's and the wider family. Words will never be able to express the gratitude we all feel to you.
Thank you so much in your consideration and assistance in helping Louie kick cancers butt!
Jessica Farrow 's involvement (page creator)
I am an aunty to the gorgeous 2 year Louie Bell has been diagnosed with a rare and aggressive Cancer called Embryonic Rhabdomyosarcoma. By raising funds for The Bell family we hope to take the pressure off them as a household and to hopefully put funds towards Proton Radiation therapy which if he qualifies is available in America. He is getting amazing care and treatment here in NZ at Starship, we are very lucky in that regard, we just want to have all options open if we can. Based on the location of Louie's cancer, proton radiation therapy lowers the risks and long term affects on Louie compared to standard radiation therapy. We want to give the BEST POSSIBLE chance to win this battle. Thank you so much for your assistance helping Louie kick cancers butt! #TeamLouie!!
Use of funds
Helping the Bell family fund Proton Therapy in the USA and help ease the day to day living expense pressure.
Hello lovely people,
Below is An update from my sister on how evaluation week is going - it has not been the news we had hoped for. We are very heartbroken but still fighting forward!!! So please keep Louie in mind and send your positive vibes to him or include him in your thoughts to whom ever you may pray to xxx
Louie had a CT on Monday and an MRI yesterday to see how he is responding to the chemo. Unfortunately it showed pretty significant growth. It’s pretty rare for this kind of cancer not to respond to the first line treatment so the doctors have had to come up with a new plan over night. We have been admitted to starship again for the next couple of days and Louie has started a new chemo already this evening. His radiation has now been moved up and will start on Monday. That has taken the option of proton therapy completely away so we will not be travelling to America for treatment.
This is obviously not the news we thought we would be hearing this week. It’s been a rough couple of days. We feel better that there’s a new plan and we have to stay positive that it will work and kill this stupid thing that’s taking up our babies entire abdomen now.
The doctors will be keeping a close eye on his kidneys as the new growth has started an obstruction and they are slightly dilated.
Please keep up the prayers and positive vibes or whatever you believe in.
He is still smiling and seems to be feeling ok.
Thank you again for all of the support. ❤️❤️❤️❤️
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This page was created on 26 Jun 2019 and closed on 31 Jul 2019.