Please help my daughter “yenyen” fight brain cancer
Tala “Yenyen” is a four year old little warrior who is battling a rare type of Brain Cancer.
Papakura, Auckland
On 8th of June 2023, my daughter was rushed into ED due to on/off vomitting and unable to walk straight. She was initially seen by a doctor which stated she was fine and looked happy. We were given 2 option: 1st option, he's happy to discharge my daughter as she looked fine and settled or 2nd option, to wait for the senior doctor in the morning. We opted for the 2nd option and waited for the senior doctor. The senior doctor observed how my daughter walked which was wobbly and her body turned to C formation. A CT scan confirmed our worst fears - a brain tumour.
Yenyen had brain surgery on the 13th of June, 2023 and the surgeons took out most of it. They did not risk removing all as it might hit a nerve that can lead to permanent damage. Day after the surgery. She had another MRI after that she had seizure and have been vomitting few times. Neurologists came and told us that the MRI result blood and blood clot. The midnight of 15th of June she had another surgery for the second time. We are currently waiting for the result of the biopsy that was sent to US and will take 3-4 weeks to examine. But the Neurologist and Oncologist suspect that it’s cancerous.
We don’t know what the next few months or years will look like, so all we can do is hope and pray for the best, stay positive, enjoy our time together & care for Yenyen as best as we can.
Any assistance will be so much appreciated, and our family will be forever grateful for any contribution big or small. Thank you very much.
Use of funds
The main purpose of this page is to help me and my daughter to ease financially, I have to stop working to look after my child. This will help me to cover travel costs, and other needs of my child Tala Wong. Thank you very much.
Latest update
First 3 monthly MRI 20 July 2024
In the beginning of July 2024, yenyen’s been assessed with the Neuropsychological team and she is diagnosed with Global Developmental Delay, and she will have reassessment in two years time because she is possible to have Intellectual Disability, ASD, ADHD in the future. I’ll make sure to reach for support that she needs to reach her full potential.
She turn 5 yrs old 16th of July, and her psychologist recommend to send her to kindy for 6-8 months for an Early intervention, and see if she is going to regular or specialized school. She is getting excited to start kindy again, but she have to get her bloodwork after a month. See if she can start her immunisation.
She had her first 3 monthly MRI after her treatment. And thank God! That there is no growth, stable and looking good. She will have another MRI after 3 months. Hoping and praying that it will be stable forever. 🙏🏻
She will be seen by her audiologist, as she may need to wear hearing aid.
She will have further testing with her endocrinologist, because of her cortisol hormone still low. She will be seen by speech therapist to help her with her speech and language.
She still have feeding tube on, and eating a little by little. We are with dietician.
Trying to wean her keppra.
Just taking everything slow, and hoping for the best outcome 🌱
Again, thank you very much for all the support and prayers. I’ll keep updating this page even it’s closed. We only have one wish for yenyen. Is to be CANCER FREE! 🌱
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