Please help us fund life-saving treatment unavailable in NZ
Bay Of Plenty, Whakatane District
Rachel was living her dream as an elite athlete, on a U.S. college football scholarship. But three years ago, her health suddenly declined. Today, she can no longer live a normal life
Rachel has Ehlers-Danlos syndrome; a connective tissue disorder that affects her entire body. Unfortunately this means she suffers from its co-morbidities, one of which are AVCS. She was diagnosed with 3 rare and devastating Abdominal Vascular Compression Syndromes (AVCS). It makes eating unbearable, and her body has been slowly starving. Now severely malnourished, she depends on a feeding tube to survive. Most days are spent in bed exhausted, unwell, with constant nausea and pain along with many other debilitating symptoms
Despite repeated pleas for help, she was left to deteriorate and over the past eight months her health worsened dramatically. She was then dismissed, told nothing was wrong; and accused of having two eating disorders
Thanks to kind families who faced similar battles we found a private vascular surgeon who finally gave her the diagnosis she had been searching for. Unfortunately there are no treatment options in NZ. We urgently needs to raise an estimated $150,000 for surgery. She is now in touch with multiple surgeons overseas. Other AVCS sufferers in NZ have publicly spoken about their similar long difficult journeys and how much their lives have improved since surgery
Every donation, share, and kind word brings Rachel closer to hope
Please help give Rachel her life back
Family members will run and update this page
Decompression surgery, post Op care, flights, accommodation and on going private medical care for her other conditions
Surgery! 15 September 2025
Rachel's surgery went well!! 7 days post op and she is healing so well! So many improvements we have already seen, plus she was walking unassisted only after a few days! All medical professionals in her care were amazing! Now it's time for the long road to recovery! We are hoping to be back in New Zealand by next weekend.
We can't thank everyone enough for the love and support in getting our girl over here! Every donation and kind message is greatly appreciated!!
Thank you!!
Appreciate it!!
Thank you! Rach has come in a few times since returning home and loved your smoothies!
Appreciate it!
Thanks Zara!! Sending you love and strength for your upcoming surgery!! Can't wait to see your progress aswell🥳🩷
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