Update for Aprill 22.
2 May 2026Just over 3 weeks into his 100-day journey now. It’s been a huge relief to finally have some space and a bit of freedom outside of the hospital. The doctors and nurses have been incredible — we’re so grateful for the care they’ve shown every step of the way.
At the moment, he’s taking up to 12 pills, three times a day. He has to be extremely careful, as his immune system is very low — similar to that of a newborn — making him highly vulnerable to infections. Over the past week, he’s been receiving blood transfusions nearly three times a week, along with injections to help boost his white blood cell count.
We were told today that the doctors aren’t fully satisfied with where his levels are at, so more tests have been scheduled for next week. This may include a bone marrow biopsy, additional blood tests, and ultrasounds. Although he’s now out of hospital, there’s still a long road ahead before he can come home. We’re taking things one day at a time, trusting the process and care he’s receiving. It may take longer than hoped, but we remain hopeful.
On a brighter note, he is overwhelmed by the love and support from whānau and everyone around him. He’s lost for words — just shaking his head at the amount of aroha being shown ❤️
One of the first things he said is that when he gets through this, he wants to go on a ride home to personally thank people. That speaks volumes about the kind of heart he has.
Thank you all for the ongoing support — it truly means everything to our whānau.