💚💚 Please help support Jytique & his Dads 100 day stay in Hospital having Chemo and Bone Marrow Transplant Surgery 💚💚
Please support young Jytique overcome chronic granulomatous disease (CGD) and so he can stop living life in excruciating pain !
Palmerston North, Manawatu-Wanganui
Kia ora koutou! ☺️
Our lovely nephew Jytique Russell, 19. was born with (CGD) chronic granulomatous disease. CGD is a serious life-threatening and life-limiting genetic condition. As a child, Jytiques medical journey has been difficult and extensive. Two years ago, Jytiques health took a turn for the worse, Due to excruciating pain and severe swelling in his jaw, Jytique was unable to finish high school and also had to medically retire from his 1st love, basketball 💔
Because basketball has been such a positive outlet for Jytique, these past 2 years have taken a massive toll on him. For a sickly boy, Jytique has always done well for himself. He is a humble, caring, beautiful young gentleman. His pride and joy was playing senior A basketball for Fielding HS, Kahungunu Māori & Manawatū reps.
This next chapter in his journey brings about his biggest challenge yet. A 100-day residency in hospital, coinciding with chemo, and bone marrow transplant surgery. Jytique is currently receiving up to 20 hours of chemo some days and is set to have bone marrow surgery. For this to happen Jytique needed a donor with a 100% match. The search went worldwide earning over 10,000 matches. Unfortunately, none were successful.
One final test on his father, Matt Russell, miraculously returned a positive 100% match ! Hallelujah !
This surgery has been aborted twice already, but finally, Jytique is ready to get his chance for a pain free better quality of life.
Please support this wonderful young man !
Tamanuhiri Russell's involvement (page creator)
Jytique is my nephew, and what a wonderful boy he is, even though he has been dealt a cruel hand he just never complains. I have seen him carry pain that would cripple grown men.. and yes its about time his uncle done something to help him. Arohanui neff
Use of funds
The money will help cover all lifes costs, possible time off work, bills, travel and accommodation costs for Jytique and solo father Matt.
Latest update
Update for Aprill 22. 2 May 2026
Just over 3 weeks into his 100-day journey now. It’s been a huge relief to finally have some space and a bit of freedom outside of the hospital. The doctors and nurses have been incredible — we’re so grateful for the care they’ve shown every step of the way.
At the moment, he’s taking up to 12 pills, three times a day. He has to be extremely careful, as his immune system is very low — similar to that of a newborn — making him highly vulnerable to infections. Over the past week, he’s been receiving blood transfusions nearly three times a week, along with injections to help boost his white blood cell count.
We were told today that the doctors aren’t fully satisfied with where his levels are at, so more tests have been scheduled for next week. This may include a bone marrow biopsy, additional blood tests, and ultrasounds. Although he’s now out of hospital, there’s still a long road ahead before he can come home. We’re taking things one day at a time, trusting the process and care he’s receiving. It may take longer than hoped, but we remain hopeful.
On a brighter note, he is overwhelmed by the love and support from whānau and everyone around him. He’s lost for words — just shaking his head at the amount of aroha being shown ❤️
One of the first things he said is that when he gets through this, he wants to go on a ride home to personally thank people. That speaks volumes about the kind of heart he has.
Thank you all for the ongoing support — it truly means everything to our whānau.
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