Poppy's quest for Wheels
Poppy is desperate to be like the other kids her age and would give anything to be able to bike beside her twin.Canterbury
I’m a SUPERHERO.
I’m 5 year old girl with Arthrogryposis and a rare genetic disorder ZC4H2 making me one of 75 in the WHOLE world.
Although things have been bumpy along my 5 year journey, I have always had my twin Willow at my side. I love doing everything with her and she is my biggest motivator as she doesn’t see boundaries only opportunities.
My body doesn’t move like other kids and I need a lot of help from others to do the things I love. I love the outdoors and my parents try really hard to give me the same opportunities as my sister; sometimes this means they even have to carry me places.
I have joints that are very tight, floppy muscles and an airway that needs lots of support meaning at the moment I still ride on the back of my Mama’s bike. BUT I’m a big kid now and would really like to be like the other kids (especially my twin) and ride my own bike.
To keep up with the other kids I need a specialized trike but mama said they are expensive so I have to wait a little while first. I am good at waiting, I have to do a lot of it in the hospital. The trike comes at a cost of $8429.00 we are trying to apply to other charities also to help cover these costs.
Its been a long road…
2 Little girls
3 Life Flights
4 Central lines
5 YEARS OLD
7 Starship admissions
20 volumes of written notes
35 days in NICU
70 days on home TPN
104 Hospital Admissions
368 clinical documents
541 nights in Christchurch hospital
1004 blood tests
1 Million Hugs and Kisses
Hayley Harrison's involvement (page creator)
I'm Poppy's Mum
Use of funds
To purchase a specialised trike that will hold Poppy's body upright, protect her airway and help her head control but most importantly look like a bike. Its called a Hase Trets Trike.
Other page links
Thank you for always supporting Poppys adventures xoxo can’t wait to share photos of this crazy kid on her bike 🤩
Thank you so helping a fellow ZC4er. Always sending love your way.
Thank you for such a generous donation! Poppy should have her bike to start school with now which is just unbelievably amazing!!! Our family is just blown away and so very thankful 💓
Thank you so much for supporting Poppy, we are very excited about this new adventure.
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This page was created on 5 Jun 2020 and closes on 6 Sep 2020.