Child Cancer - Brayden Rae aged 11
Canterbury
Brayden is my 11 year old best friends boy, he is like a nephew to us. On the 3rd February 2015 we received the worse phone call ever to say that Brayden had been diagnosed with Ewing Sarcoma - Bone Cancer. The tumour is on his right arm above his elbow. He has gone thru four rounds of chemo so far, he has another two rounds to go before he has surgery, after surgery he has another 11 rounds of chemo to endure.
The money raised from this page will be used to help ease the financial burden this has caused, to get Brayden to Christchurch for treatment and to take all the children on outings when Brayden is feeling ok, eg Orana Park.
Im involved because he is my best friends boy. I am there to support them any way I can and this is one of the ways that I feel that I can help. They live in Timaru and have to regularly travel to Christchurch for treatment. Mum and Dad have had to give up work to help care for Brayden as one has to be with him all the time and they have another three children to care for as well. With this happening to Brayden it has caused major financial difficulties for the family and I would like to try to help them out.
Chemotherpy Finished 20 December 2015
Over the weekend of 12th and 13th of December, Jase and I spoke to Brayden's oncologist Tristian, about what to do with the next 4 cycles.
On Tuesday (15/12/2015), I had a meeting with Tristian and it was decided by the team of oncologist to finish chemotherapy, in the best interests to Brayden's health. But they can not give us any guarantees the cancer won't return.
Brayden had a great response to chemo before his surgery, with total removal of the tumour and the tumour being dead under the microscope.
100% Cancer Free.
After the surgery Brayden was getting sicker and sicker in between treatments, spending more time in hospital than at home and his platelets were taking more time to rise.
And now with the recent fungal in his lungs, it was time to call it quits.
Tristian said if Brayden was to have another round of chemo or 2 and get the fungal back in his lungs, if might not be a good outcome.
If there had been any signs of spreading, or part of the tumour left, or it being alive under microscope there would be no way they would stop chemo.
So under the guidance and putting our faith and trust in Brayden's team of oncologist, we went home for good on the (18/12/2015).
We will only return to Christchurch/Choc, for tests, scans, MRIs. And of course to visit our wonderful team of experts and caring nurses.
What's in store for 2016: end of January we will be having a end of treatment meeting and it's very detailed. Brayden will have a ray of appointments that week, and will be seeing his surgeon Gordon Beadle.
As a parent, with a child that has had cancer, there's stress and worry, especially fearing it will come back.
As we've said to Brayden if it ever to return we will grab it by the balls, and do it again.
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.