23/02/21 23 February 2021
Unfortunately, although the surgery was successful in removing the tumour at the time. Last week Sophia received tragic news that the tumour had grown back extremely quickly and aggressively following surgery in the space of a month. From the tumour that was removed the Pathologists were finally able to identify the type of cancer and it is the one of the rarest types of cancer in the world, called Follicular Dendritic Cell Sarcoma. It is so rare that only 400-500 people in the world have been diagnosed with this type of sarcoma and no one has ever survived at this aggressive stage.
It is incurable and terminal and although Sophia will be restarting chemo this week, all it will do is help prolong her time that little bit more so she can spend time with her family.
Dear Sophia, Words cannot express my sorrow at hearing your news. You, Cam and Augustina are often in my thoughts and prayers. Wishing you all the best with your chemo. My kindest regards.