River-Lee is 2 1/2 months old and has Trisomy 18. Her parents provide her 24hr care and are in need of financial support.
Northland
Hi, my name is River-Lee. I was born on the 17th of August 2017. I was born with 3 holes in my heart and eventration of the diaphragm. This means I have trouble breathing and my heart has to work really hard. I was booked in for surgery when I was 1 month old but the doctors did some tests and found out I have Trisomy 18. That’s when plans changed for me. The doctors said it was too risky to operate and my future outcome uncertain so I was denied surgery. Trisomy 18 means I have an extra chromosome. It also means that my life expectancy is unknown but usually short. Now the doctor’s plan for me is to keep me comfortable so that I can enjoy time with my family for as long as I can.
My Mummy and Daddy ( Jen Flavell and Jamieson Pitman) care for me 24 hours a day with help from nurses in the hospital. They are enjoying the time they have with me for as long as they can but they are tired and worry about finances. Not being able to work as they used to means money is tight. They have the added worry of expenses to come. If you are able to donate to help support them in this really tough time for them it would be greatly appreciated. Prayers would also be appreciated as they are praying for a miracle because only God can fix this.
We are good friends with the family, & are trying to help them out through this tough time.
Costs associated with being unable to work while they care for their daughter 24 hours a day. Funeral expenses.
Update on River Lee 12 November 2017
To whanau, friends and all who were a part of our beautiful 3 month old baby girl River-Lee-Rose Patricia Hannah Pitman's brief journey.... She passed away peacefully in her sleep yesterday 11:11:17 at 12noon.
Her spirit was determined to stay with us and she fought so hard but her heart grew tired. She may have been here briefly but she impacted our lives forever. She gave us so much joy and each day was greeted as a blessing.
We're going to miss you our beautiful girl. xo
Thanks for your amazing support.
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