Please help us to raise funds for Renee to get the equipment she needs for further development
Taranaki
Renee Hunger was diagnosed at birth with Wolf-Hirschhorn Syndrome in 2011.
Wolf-Hirschhorn Syndrome is a very rare syndrome and in New Zealand only 6 people have it, and all of these are female, Renee is the youngest and the only one in Taranaki.
Renee has had many procedures and surgeries in her young life, she can not yet sit by herself, walk, talk or feed herself.
Renee has proven to be a real fighter and her and her family have overcome many, many obstacles in the past 3 and a half years.
Although Renee is challenged physically and mentally she is a happy, energetic, strong and beautiful little girl.
Renee has many avenues of support in her life but she now is at a point where more equipment is required for her to really excel, especially physically.
At the moment the opportunity for Renee to be measured for a Dynamic Movement Orthosis (DMO) suit is approaching.
This suit will greatly help Renee with her ability to sit and improve her head control which is vital for her as she is rapidly growing and getting stronger.
There is a waiting list for funding through the TDHB for these suits in Taranaki and knowing that Renee will benefit from these we are beginning to do some fundraising to get these suits and other equipment to her asap.
Any donation will be greatly appreciated and put to excellent use in making Renees journey a little bit easier.
Kind regards and many thanks,
Amanda Minnear.
I'm involved as I work for the family as Renee's caregiver.
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