Back to page

💜 Rochelle's Journey 💜

  • I've made my decision

      2 November 2023
    Posted by: Rochelle Robinson
    Main image

    Hello all you beautiful kind and generous supportive people.

    I want to take this opportunity to thank you al again for your donations.

    I have decided not to go through with the surgery.

    There is just not enough information out there about it's safety and I don't want to leave it to chance.

    I don't want to spend anymore time in the hospital. I'm really relieved knowing that I don't need to go back there for a while fingers x🤞

    I intend to spend my time at home enjoying the spring and summer garden with my mum and my cat.

    Unfortunately my eldest son may not be able to come over for a while but right now I'm feeling pretty good. I just get very tired very easily so I need a lot of rest but I otherwise feel ok.

    The thing is, when you're having treatment you know exactly what's going on inside. When you're not having treatment it's a mystery. The disease could be growing fast or spreading and until it begins to cause pain or discomfort you really wouldn't know and by that time it could be too late but that's a chance I'm willing to take because being at home with family and friends and knowing mum's not having to run back and forward to and from the hospital is really what matters most to me.

    I'll update again if anything changes but for now, stay groovy and enjoy the warm weather. If you're across the pond stay cosy my friends.

    Lots of love 🌬️🔥🔥🔥💃🌟🌈💜

      0 comments  |  Login to leave a comment

  • To have surgery or to not have surgery? That is the question.

      13 October 2023
    Posted by: Rochelle Robinson

    I have a huge choice to make.

    To have surgery or to not have surgery.

    If I choose to have more surgery to replace my hip, there's a possibility that this could increase the chance of the cancer re-entering the marrow which will decrease my life expectancy quite considerably. If I do go ahead with the surgery and it is a success it will help to decrease my pain and offer me more mobility.

    If I don't go ahead with surgery I will be using crutches and wheelchair for the rest of my life but unless the tumor spreads to another major organ eg. my brain, or finds its way back into the marrow, I could be around a little longer just yet.

    Once the cancer invades my marrow my lifespangoes from months to weeks.

    How common is myeloid sarcoma?

    Myeloid sarcoma is rare, affecting anywhere from 2.5% to 9.1% of people diagnosed with AML. While AML is one of the most common types of leukemia in adults, it’s rare, too, making up only 1% of cancer diagnoses each year in the U.S. Myeloid sarcoma is even rarer among people without an AML diagnosis (primary myeloid sarcoma). About 2 out of 1 million adults without an AML diagnosis have myeloid sarcoma.

      0 comments  |  Login to leave a comment

  • Rochelle's Journey

      5 October 2023

    Hi Everyone thank you so much for all the donations. Just a quick update Rochelle is undergoing radiation at the moment. Her son Joel has arrived in NZ and the family are working on Sam getting here as soon as possible.

      0 comments  |  Login to leave a comment