WOW WOW WOW!
Myself & my family are just speechless by the care, generosity & kindness of everyone, even complete strangers. We would love to thank you all individually but that’s not possible. So please take this as a sincere thank you. We really appreciate every single one of you taking the time to donate & or share this page.
The Auckland referral for surgery came back with an absolute NO GO!!! The cancer is far to extensive for any type of surgery to take place.
I have done a lot more research into the Mexico Cancer Hospital's & it wasn’t all roses like they advertise. I have spoken with many who have been or known someone who has had treatment there & didn’t get the best feedback! So it’s not where I’d want to spend $100,000 for a less than ideal outcome
Back to the drawing board I go & I am still researching overseas options.
In the mean time let’s get this show on the road and try & kick the cancer into touch!
I don’t have time up my sleeve to keep researching without starting some sort of treatment.
So it’s the dreaded chemo tablet Trametinib! Not only does it come with the huge price tag $2,235 per 30 tablets, 1mth supply, but also a list as long as your arm of shitty side effects as all chemo drugs do! I am on day 16 & they are just starting to rear their ugly heads... fingers crossed this nails it! This drug has done very well in some of its trials but not so well with the patients tolerating it!!!
On a positive note I decided to do a blood test called the RGCC test which is a Greek Test for Circulating Tumour Cells.
Circulating tumor cells are cancer cells which have broken away from the primary tumor and entered the blood stream where they circulate and have the potential to generate metastatic disease. These cells can be isolated and identified and there is growing interest in their detection for the following purposes:
-detect early signs of a developing cancer,
-help to monitor existing cancers,
-produce an individual profile of which cancer drugs and which natural substances can be used to achieve the best treatment outcomes.
This test costs about $4,000 & once again NOT funded but will give the medical team supporting me so much information as to what is the best targeted treatment. Also the most important information, where is best to spend the precious $$$$ next.
The test is sent to Greece & hopefully the results should be back within the next two weeks. Please see the link below about the test in case it can help anyone out there reading this.
I will be in touch again with an update once I get the results & maybe hopefully a personalised game plan!
Please can I ask again from the bottom of my heart to share my page far & wide. I really am banking on seeing my daughter walk down the aisle.
Thank you & I’ll be in touch soon.
Cora, Euan & Niamh.
https://www.nutripath.com.au/product/rgcc-ctc-analyses-exclusive-to-nutripath-in-australasia-blood/
