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Run for Riri - Half Marathon Fundraiser

Cause page created in the Health category by Carol Beaumont for "Riri's ongoing CDLK5 Treatment"


$2,444 donated
Given by 59 generous donors in around 6 months
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We're running a half marathon to raise funds for Amaria and give her a boost to get to the next step (hopefully on the move!)

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  Canterbury

UPDATE: Unfortunately, due to Covid 19, the St Clair half marathon has been cancelled. We are all going to do individual activities on Saturday 9 May to mark the day and thank all our supporters. Later in the year, when it is safe to do so, we are going to run 21km together. We will keep all our supporters updated and check out the Running for Riri FB page to see pics of what we do on Saturday.

Thanks for all your support!! We are still running for Riri and she is still working hard throughout lockdown x

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Last year I challenged myself to my very first half marathon, coming from the girl who literally couldn't run from one lamppost to the next to tackling 21kms at the St Clair Half Marathon in May.

I used this as an opportunity to raise funds for wonderful friends of mine who have a daughter called Amaria. Amaria (Riri) has CDKL5, a rare genetic disorder that causes severe epilepsy and developmental delays. Because Riri's disorder is so rare the expensive therapy she needs is on going and we are also hoping to raise enough for an all terrain buggy for this lovely young lady to use as she grows up.

This year I have rallied a group of amazing first timers to join us, including Riri's parents Steph and James Emery themselves. The other amazing ladies in our team are Anita Van Der Valden, Lois Monteba & Elsa Pennu with others still potentially joining too. Most of us met through dancing with the Hot Mama's which is part of a dance club owned by Riri's auntie and we are all local to North Canterbury. 

We are all hoping to put our efforts to good use to raise all we can for Amaria. Every little bit helps so any amount will be greatly received by this deserving family and it definitely gives us extra motivation to help get across that finish line!

Carol Beaumont's involvement (page creator)

Our team is running to raise money for Amaria to fight her ongoing battle with CDLK5.

Use of funds

Funds will go on Amarias therapy. The Timmermans Clinic she attends is in Adelaide and the cost of the course fees, flights, accommodation and equipment needed to continue the programme at home is an ongoing battle.


Latest update

We're Still Running!  20 July 2020

Posted by: Carol Beaumont

Although our original event may have been cancelled we have found a new one so we can keep #runningforriri! Follow our journey as we now take on the Queenstown Half Marathon November 20th :-)

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Latest donations

Mike Pero Real Estate Rangiora
Mike Pero Real Estate Rangiora on 24 Jul 2020
Private
Joy
Joy on 12 May 2020
To special wee girl "Happy 5th Birthday" love & hugs Joy ❤
Private
Gearoid
Gearoid on 12 May 2020
$30
Anne and Steve
Anne and Steve on 10 May 2020
Great work!
$50
Sonya
Sonya on 10 May 2020
Awesome cause! From Setters
$40

Who's involved?

Carol Beaumont's avatar
Created by Carol Beaumont
Stephanie Emery's avatar
Paying to a verified bank account of Stephanie Emery on behalf of Riri's ongoing CDLK5 Treatment

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This page was created on 6 Feb 2020 and closes on 20 Oct 2020.
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