Angus and NF

Angus has a tumour that has affected his left ear canal and has spread into his throat. The carotid artery, facial and vegas nerves are all engulfed within the tumour which makes any effort to have surgery life threatening.

International Clinical trials around the world are giving NF children hope but unfortunately here in New Zealand Angus doesn't have access to these.

The Westmead Hospital in Sydney runs a specialist Neurofibromatosis clinic. As we are kiwis, we have to pay to attend these clinics in Australia. If Angus is able to get onto an international trial his family would need to pay for the medicine and all appointments including MRI's under general anaesthetic.

Doctors have advised that if Angus's tumour continues to spread in his throat Angus could start to choke on food on a regular basis. This could lead to him inhaling his food into his lungs and possible leading to pneumonia.

Please lets all get together and help Angus - who's behind us.... I am are YOU!!!!!