Running multiple 1/2 marathons throughout 2016 and 2017 to help raise funds for Angus to receive much needed treatment.
Bay of Plenty
One in every 3,000 children is born with neurofibromatosis (NF), a genetic disorder that causes tumors to grow all over the body. We need to take action now so that no child or adult has to face the challenges of NF – learning disabilities, blindness, pain, deafness, cancer, disfigurement, bone defects and cardiovascular problems. There is no cure for NF, but as a parent of a child suffering from this disfiguring and painful disease and also a member of the Running Bug - NF Endurance Team (a fundraising support arm of the Ladybug Foundation) we are fighting to change that through raising awareness.
Angus's tumour contines to grow and is now at the point where it is life threatening. Please help me raise funds for Angus and family to make a much need to trip to the NF clinic in Sydney to obtain a better insight to his condition and hopefully obtain the much needed treatment he and his family so terribly need.
I am wanting to help Angus so I am currently training for various NZ Half Marathons throughout 2016 and 2017.
The Ladybug Foundation, via the Running Bug Endurance Team, has set a goal of raising over $5,000 and I am asking YOU to please make a contribution.
Angus needs your help, your generosity and your support.
Your donation will ensure Angus obtains an insight to his condition and hopefully obtain the much needed treatment he and his family so desperately need. What if this were your child given the diagnoses that this is now life threatening?
Thank you in advance for your generosity.
If you have any questions, please contact me at ladybugfoundation@xtra.co.nz or 0275257303.
I am founder of the Running Bug Endurance Team a division of the Ladybug Foundation.
The Ladybug Foundation is dedicated to our beautiful daughter Mikayla Mullins.
The Ladybug Foundation is a charity focussed on supporting families dealing with Neurofibromatosis. Our personal journey with NF has given us a good understanding of what a roller coaster ride NF really is.
This Foundation is dedicated to making a real difference for not just the NF community but the wider community of New Zealand as awareness is the key to finding a cure so please join us as we head on this journey of awareness……………….
We may have NF but NF doesn’t have us!!!
The Ladybug Foundation is a charity focussed on supporting families dealing with Neurofibromatosis.This Foundation is dedicated to making a real difference for not just the NF community but the wider community of NZ - awareness is the key to finding a cure
Angus and NF 14 October 2016
Angus has a tumour that has affected his left ear canal and has spread into his throat. The carotid artery, facial and vegas nerves are all engulfed within the tumour which makes any effort to have surgery life threatening.
International Clinical trials around the world are giving NF children hope but unfortunately here in New Zealand Angus doesn't have access to these.
The Westmead Hospital in Sydney runs a specialist Neurofibromatosis clinic. As we are kiwis, we have to pay to attend these clinics in Australia. If Angus is able to get onto an international trial his family would need to pay for the medicine and all appointments including MRI's under general anaesthetic.
Doctors have advised that if Angus's tumour continues to spread in his throat Angus could start to choke on food on a regular basis. This could lead to him inhaling his food into his lungs and possible leading to pneumonia.
Please lets all get together and help Angus - who's behind us.... I am are YOU!!!!!
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