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Ryuki with Osteogenesis Imperfecta

Closed Cause page created in the Kiwi Kids category by Asami Wisjnuery


$38,977 donated
Given by 375 generous donors in over a year
  Closed

Ryuki was born with Osteogenesis Imperfecta. He will be on wheelchair. Help us to modify our house.

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  Canterbury Disability Sick Kids

Ryuki, our fourth son, was born with Osteogenesis Imperfecta more likely type 3 or 4 (also known as brittle bone disease).

He is now 22 months old and has had 7 fractures so far (including one before birth). He is extremely fragile and needs to be surrounded by soft surface to prevent fractures. He just started to roll over and is trying to crawl.

He had osteotomy in August to straighten his femurs and insert pins to make bones stronger. However, doctors can not guarantee Ryuki will be strong enough to stand up and walk. We are getting ready for his wheelchair so he can mobilise and explore by himself.

Now we need to modify our house for Ryuki to use wheelchair, crawl and hopefully (fingers crossed!) walk in the house safely in the future. To do this, we need your help!

Find more about Ryuki on Facebook

facebook.com/ryukiwithoi

Thank you very much for supporting Ryuki. Your help will reduce the risk of Ryuki's fractures in the future.

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Latest update

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Updating Ryuki's life  11 December 2015

Posted by: Asami Wisjnuery

Ryuki is now 2 and half years old

He's got his own powered wheelchair.

He had another osteotomy in June for his tibias and will be wearing splints on 24/7 for few years.

Since Ryuki had osteotomy for his femurs and tibias, he has been doing really well. He is crawling and holding furnitures to stand up.

It is amazing to see what Ryuki can do now.

Read 2 more updates  |  Share this update


Latest donations

I & S Brownlie and T Wilson
I & S Brownlie and T Wilson on 29 Jun 2016
In loving memory of Samuel Gibson We wish you all the best for the future.
Private
Havelock North Primary School
Havelock North Primary School on 29 Jun 2016
With our best wishes. This money was raised by the kids at Havelock North Primary School, in memory of Sam Gibson, a valued member of our school community.
$3,724.50
RCR colleagues
RCR colleagues on 27 Jun 2016
Private
Todd And Sue
Todd And Sue on 25 Jun 2016
payment for one half the Diva voucher won in auction with Lianne Herbison
$100
Guest Donor
Guest Donor on 24 Jun 2016
Private

Who's involved?

Asami Wisjnuery's avatar
Created by, and paying to a verified bank account of, Asami Wisjnuery

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This page was created on 1 Feb 2015 and closed on 30 Jun 2016.
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