Salems road to recovery with hirschsprungs disease

Salem was born on the 19th of March 2022 with a rare condition called Hirschsprungs Disease, the 1st couple weeks he was in NICU after having emergency surgery where they found he had the disease. He was given a colostomy (stoma), fast forward till 2 weeks before his 1st birthday he was scheduled in for surgery to remove 75% of his large intestine and have a pull through done which involves reconnecting the good parts of his intestine to his anus. After 6 and 1/2 hour surgery Salem was in recovery. However after a few days while recovering he stopped feeding and eating became feverish sore and drowsy. Emergency x-rays found there was a small leak in his bowels and a colapsed lung which caused alot of pain and discomfort for him. He was then rushed back into emergency surgery and bring back his stoma for another 6 weeks while everything heals, He is now currently at home but every 2 weeks we have to go up to hospital where they will put him to sleep and make sure everything is healing good and stretch his large intestine until they think he's fully healed and then they will reverse the stoma.

What is Hirschsprungs Disease

This is a condition of the large intestine (colon) and makes it difficulty passing stool. It involves missing nerves cells in the muscle part of the intestine.