Help Sarah Stanley Breathe- fund miracle Trikafta drug

Please help fund Trikafta - The game changer for Cystic Fibrosis

CF is a genetic disease in which thick, sticky mucus builds up in organs, most seriously, the lungs. It is often fatal in early adulthood.

This year I'd like to be given the opportunity to try ..Trikafta.

My daily life:

• Excruciating painful spasms all over my ribs, back & neck.

• Severely distended abdomen related to Cystic Fibrosis complex gut issues.

• inflammed arthritic Joint pain.

• Constantly suffocating in my own mucus daily even after physio therapy (mucus clearance).

•Severe brain fog.

•Endless asthma medicine inhalations through the nebuliser, oral & I.v antibiotics throughout the year. Anti fungal drugs.

•Extreme dizzy episodes that leave me struggling to keep my balance at times.

• Insomia related to Coughing, gasping, waking up multiple times, choking on my own mucus as I try to sleep.

• The endless infected exacerbations, my lungs taking hit after hit.

At 41 years Ive come so far and am grateful for living this long but...

Nobody knows the silent tears cried every day between these 4 walls. wishing that I could go for a family walk, bike ride, family outing WITHOUT suffering painful lung spasms- eg. (like a tight band severely restricting my breathing so I'm left panting.) Coughing fits ultimately leading to extreme exhaustion.

I want to be a mum & a wife who thrives- not strives just to survive.

https://www.1news.co.nz/2022/03/29/cystic-fibrosis-sufferer-born-again-after-using-miracle-drug/