Help Scott manage his pain and help towards finding a cure for Hidradenitis suppurative.

Hi Jane,

Thank you so much for thinking of me, that really means a lot. I’m doing as well as I can at the moment.

I love hearing that Christchurch is looking its best. Spring there with the cherry trees and daffodils must be beautiful. I've only been there during the winter where it snowed, was so nice and white.

Yes, I’ve been working on music. It’s a slow process with lots of demos, but I’m hoping to release an album early next year. It’s not easy doing it all by myself! I do put out the occasional snippet on Instagram if you have that, feel free to check some of it out if you’re interested. My Instagram is Scott leo

It’s great that you’re still singing in the community choir. Even with fewer members, it sounds like you’ve got a really good setup now with the new conductor and pianist. Hope you keep hanging in there, it must be lovely to still have that music in your week.

God bless you.

Warmest regards,

Scott

Hi Jane, I hope you are well, Thank you for thinking of me. I appreciate that alot. I'm struggling alot. Very painful. Still in the process of getting funding for the dressings. Been a nightmare.

Hi Jane, I hope you and your family are well.

Yes I was absolutely disgusted that this has happened to me. I have made a formal complaint and still waiting for a response.

It's very disheartening that a health practitioner is in a position to help but chooses not to. Karma will catch up to them.

Thank you for your advice I shall make contact with my local MP. That's sound advice and I will definitely go forward with that.

Love and light,

Kindest regards

Scott

Hi Jane,

Thanks so much for checking in, the cooler weather has definitely helped a bit with the HS flares, which is a nice relief.My doctor has given me some general tips for managing overall health, but with the HS it's tricky because a lot of standard advice doesn't always fit. Exercise in particular has been tough, anything beyond very light activity tends to trigger more flare-ups and makes it really painful to move around afterward. So I mostly just get gentle movement by walking my dog, which feels manageable.I also have heart issues stemming from familial hypercholesterolemia, so we're keeping a close eye on that with meds and diet too. It's a lot to juggle sometimes! How about you? Hope all is well and you had a wonderful holiday.

Kind regards

Scott 🤍

Thank you so much 🙏🏻😊

Aww thank you, the procedure itself was great the removal of stitches 2 weeks later was not so nice. Nurse was very rough removing them, The biopsy results came back as Benign which was such a relief. Very grateful it was non cancerous. 😃