HS, It's a daily battle, a life filled with agony surgeries, I&D procedures, removing of the packing in the wounds, boils all of my body
Auckland
Introduction:
Hello, my name is Scott Denham, and I'm a 34-year-old living with a little-known autoimmune condition called Hidradenitis Suppurativa (HS). I've been battling HS since I was 16, and I'm here to share my story with you. Many people have never heard of HS, and that's precisely why I need your support in raising awareness and helping those who suffer from this debilitating condition.
Understanding Hidradenitis Suppurativa (HS):
HS is a chronic condition characterized by painful, recurrent acne nodules that can lead to abscesses, draining sinus tracts, severe scarring, and life-altering disability. It often takes years to diagnose, leaving individuals like me in pain and uncertainty.
The Struggle:
Imagine not knowing what's wrong with your body for over seven years and then discovering there's no cure. To make matters worse, many sufferers, including myself, have been wrongly blamed for this condition due to a lack of understanding by some medical professionals. This misjudgment can lead to feelings of shame and depression.
Along side living with the multiple side effects from years of Doctors and skin dermatologist experienting on me with a variety of prescription drugs : Including drugs used for Cancer patients. That have caused my teeth to decay.
My Experience:
My life has been profoundly affected by HS. It's a daily battle, and simple tasks like dressing, walking, or even sitting can be excruciatingly painful due to cysts covering my body. The pain is relentless, surgeries are frequent, and the cost of dressings alone is astronomical. 4 years ago, I had to withdraw all of my life savings from my KiwiSaver to cover these costs and unfortunately it's all gone now.
The Need for Support:
I've been deemed unfit to work due to my condition, which is both a relief and a burden. Pain medication helps, but it's not government-funded, making it costly. With the support of my amazing community and fellow supporters such as yourselves , I've come a long way, but I still need help.
How You Can Make a Difference:
Spread Awareness: Share this campaign with your friends, family, and social networks to help educate others about HS.
Financial Support: Donations will go towards my medical expenses, including pain medication and dressings, which are essential for managing HS.
Advocate for Research: Support research efforts to find a cure for HS. Together, we can make a difference in the lives of thousands of sufferers.
Conclusion:
Your support can change lives, Especially mine. Let's stand together to raise awareness for Hidradenitis Suppurativa and provide hope to those who are suffering. With your help, we can make strides towards a future where HS is better understood and, hopefully, one day, cured.
Thank you for being a part of my important journey.
Kind regards,
Scott Denham
Medicine that isn't subsidized. Unfunded pain relief and dressings.
Extending close date. 21 May 2026
I’ve extended this page because I’m still living with painful Hidradenitis every day. On top of that, my doctor has now told me I’m at high risk of heart attack and stroke. It’s been a tough period, but I’m doing my best to manage it all. Thank you for your ongoing support, it really helps. 🤍
Hi Jane. Thank you for thinking of me this month. I'm glad to know that you are safe and well and got back from holiday safely. Much love Scott 🤍
Hi Jane. Thank you 😊 I hope you are keeping well.
Thank you so much for reaching out and offering your advice , I really appreciate you taking the time, especially since you're dealing with your own stage 3 condition. That means a lot.Just to let you know, I’ve already cut out the nightshades (potatoes, tomatoes, etc.) and sugar from my diet. I’m also not interested in cannabis oils or medical cannabis, as I don’t like the feeling or the taste. I will look into the bandages/dressings from the hospital, the high user card, and the supplies you mentioned. The estrogen information is interesting too — I know everyone’s body is different.Wishing you all the best with managing your condition in your new town, and thank you again for the kind words and blessings. It’s nice to know there are others in New Zealand going through this.Take care 🪽
Hi Jane, I just wanted to say a huge, genuine thank you. For over a year now you’ve been my one and only supporter, and I honestly don’t know what I would have done without your kindness. Your support has meant the world to me, truly. Thank you, from the bottom of my heart. Scott
Thank you Jane for your continued contributions, over the last 2 years you have been my only donor, I am forever grateful for your on going care and support. Much love Scott x
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