HS, It's a daily battle, a life filled with agony surgeries, I&D procedures, removing of the packing in the wounds, boils all of my body
Auckland
Introduction:
Hello, my name is Scott Denham, and I'm a 34-year-old living with a little-known autoimmune condition called Hidradenitis Suppurativa (HS). I've been battling HS since I was 16, and I'm here to share my story with you. Many people have never heard of HS, and that's precisely why I need your support in raising awareness and helping those who suffer from this debilitating condition.
Understanding Hidradenitis Suppurativa (HS):
HS is a chronic condition characterized by painful, recurrent acne nodules that can lead to abscesses, draining sinus tracts, severe scarring, and life-altering disability. It often takes years to diagnose, leaving individuals like me in pain and uncertainty.
The Struggle:
Imagine not knowing what's wrong with your body for over seven years and then discovering there's no cure. To make matters worse, many sufferers, including myself, have been wrongly blamed for this condition due to a lack of understanding by some medical professionals. This misjudgment can lead to feelings of shame and depression.
Along side living with the multiple side effects from years of Doctors and skin dermatologist experienting on me with a variety of prescription drugs : Including drugs used for Cancer patients. That have caused my teeth to decay.
My Experience:
My life has been profoundly affected by HS. It's a daily battle, and simple tasks like dressing, walking, or even sitting can be excruciatingly painful due to cysts covering my body. The pain is relentless, surgeries are frequent, and the cost of dressings alone is astronomical. 4 years ago, I had to withdraw all of my life savings from my KiwiSaver to cover these costs and unfortunately it's all gone now.
The Need for Support:
I've been deemed unfit to work due to my condition, which is both a relief and a burden. Pain medication helps, but it's not government-funded, making it costly. With the support of my amazing community and fellow supporters such as yourselves , I've come a long way, but I still need help.
How You Can Make a Difference:
Spread Awareness: Share this campaign with your friends, family, and social networks to help educate others about HS.
Financial Support: Donations will go towards my medical expenses, including pain medication and dressings, which are essential for managing HS.
Advocate for Research: Support research efforts to find a cure for HS. Together, we can make a difference in the lives of thousands of sufferers.
Conclusion:
Your support can change lives, Especially mine. Let's stand together to raise awareness for Hidradenitis Suppurativa and provide hope to those who are suffering. With your help, we can make strides towards a future where HS is better understood and, hopefully, one day, cured.
Thank you for being a part of my important journey.
Kind regards,
Scott Denham
Medicine that isn't subsidized. Unfunded pain relief and dressings.
Update on my life with Hidradenitis 10 April 2025
Hey everyone,
Just wanted to give you a quick update. I’m still battling Hidradenitis, but I’m doing okay—pushing through the pain and refusing to let it define me. This week, I even took Bailey to the beach, which felt like a small win. Donations have been quiet for months, so if you wouldn’t mind sharing my Give a Little page, it’d mean the world—more awareness and support could really help.
This condition stole a lot of my freedom, but I’m making the best of it. I’ve turned tough days into something positive—teaching myself to sing and create music. My first album is 50% done, all by me, beats included. I’m so proud and hope it’ll inspire others.
Managing this alone is rough, though. Food costs are brutal, and my $55 budget after bills doesn’t cover the fruits, veggies, and meat I need to stay on top of symptoms. I’ve had to drop my Tilray prescription since it’s not funded and I can’t afford it. Your past donations have been a lifeline—thank you, truly. Much blessings to you all. If you can share or chip in, it’d help me keep going strong.
Thank you.
Scott
Thank you for your contribution. Your support means a great deal.
Dear Jane, I hope this message finds you well, I wanted to take a moment to express my deepest gratitude for your unwavering support and generous donations over the years. Your contributions have truly been a lifeline for me, enabling me to experiment with natural products like organic fruits and vegetables. These resources have allowed me to create various pastes and lotions in my ongoing quest to find relief from Hidradenitis. While I have not yet discovered a cure, I am thrilled to share that I have made significant progress. My flare-ups are less frequent, inflammation has decreased notably, and the overall pain has become more manageable. This progress would not have been possible without your steadfast support. Thank you, Jane, for believing in my journey and helping me along the way. Your generosity means the world to me. May God bless and protect you always. Warm regards, Scott x
I hope this message finds you well. I wanted to take a moment to express my deepest gratitude for your continued generosity and support. Your constant donations have made a significant impact on my cause, and I am profoundly grateful for your unwavering commitment. Your kindness and dedication inspire me every day. I am forever thankful for your support and cannot express enough how much it means to me. Thank you, Jane, from the bottom of my heart. Your generosity will always be remembered and cherished. My heartfelt appreciation, Scott 💙😇
Thank you deeply for invoking the power of faith in your words. Your prayers and support mean a great deal to me. May blessings abound for your kindness and may healing grace touch us all. 😇🙏🏻😇🕊️
Thank you for your blessings of contributions Jane, sorry for the delayed response. Was in and out of hospital this week and back again. Your support means alot to me, always has. Wishing you well.