HS, It's a daily battle, a life filled with agony surgeries, I&D procedures, removing of the packing in the wounds, boils all of my body
Auckland
Introduction:
Hello, my name is Scott Denham, and I'm a 34-year-old living with a little-known autoimmune condition called Hidradenitis Suppurativa (HS). I've been battling HS since I was 16, and I'm here to share my story with you. Many people have never heard of HS, and that's precisely why I need your support in raising awareness and helping those who suffer from this debilitating condition.
Understanding Hidradenitis Suppurativa (HS):
HS is a chronic condition characterized by painful, recurrent acne nodules that can lead to abscesses, draining sinus tracts, severe scarring, and life-altering disability. It often takes years to diagnose, leaving individuals like me in pain and uncertainty.
The Struggle:
Imagine not knowing what's wrong with your body for over seven years and then discovering there's no cure. To make matters worse, many sufferers, including myself, have been wrongly blamed for this condition due to a lack of understanding by some medical professionals. This misjudgment can lead to feelings of shame and depression.
Along side living with the multiple side effects from years of Doctors and skin dermatologist experienting on me with a variety of prescription drugs : Including drugs used for Cancer patients. That have caused my teeth to decay.
My Experience:
My life has been profoundly affected by HS. It's a daily battle, and simple tasks like dressing, walking, or even sitting can be excruciatingly painful due to cysts covering my body. The pain is relentless, surgeries are frequent, and the cost of dressings alone is astronomical. 4 years ago, I had to withdraw all of my life savings from my KiwiSaver to cover these costs and unfortunately it's all gone now.
The Need for Support:
I've been deemed unfit to work due to my condition, which is both a relief and a burden. Pain medication helps, but it's not government-funded, making it costly. With the support of my amazing community and fellow supporters such as yourselves , I've come a long way, but I still need help.
How You Can Make a Difference:
Spread Awareness: Share this campaign with your friends, family, and social networks to help educate others about HS.
Financial Support: Donations will go towards my medical expenses, including pain medication and dressings, which are essential for managing HS.
Advocate for Research: Support research efforts to find a cure for HS. Together, we can make a difference in the lives of thousands of sufferers.
Conclusion:
Your support can change lives, Especially mine. Let's stand together to raise awareness for Hidradenitis Suppurativa and provide hope to those who are suffering. With your help, we can make strides towards a future where HS is better understood and, hopefully, one day, cured.
Thank you for being a part of my important journey.
Kind regards,
Scott Denham
Medicine that isn't subsidized. Unfunded pain relief and dressings.
New painful lump 25 January 2026
Hey everyone 🤗
I hope you're all doing well.Unfortunately, I’ve got a new flare-up under my arm. I’ve attached a photo, but honestly, the picture really doesn’t capture how big the lump actually is—it’s much more noticeable in person.On a different note, I recently had the stitches removed from my biopsy site. Sadly, the experience with the nurse wasn’t great. Instead of being gentle (as she should have been), she yanked them out quite roughly—almost like plucking eyebrows—and it caused the wound to reopen. I’ve submitted a formal concern to the practice because I worry she might handle other patients, especially children, the same way.Thank you so much for sticking with me on this journey. Even though this is a lifelong condition, I still hold onto hope that one day we’ll find a real cure for this awful disease.I completely understand that times are tough right now and donations have slowed down. But if you’re able to help in another way, simply sharing my page would mean the world to me—it helps spread awareness to a much wider audience.Sending you all kind regards and so much gratitude
💓🪽
Thank you Jane for your continued contributions, over the last 2 years you have been my only donor, I am forever grateful for your on going care and support. Much love Scott x
Hi Jane, I want to thank you from the bottom of my heart for your constant generosity and unwavering support. Your repeated donations mean the world to me, they truly make a difference, allowing me to be able to fund the medication that allows me to feel less pain, have more mobility and just truly an overall better quality of life and that is truly the bestest gift in life. I am deeply grateful for your kindness and trust. Wishing you a very Merry Christmas filled with joy, warmth, and all the magic of the season! May you and your family have a safe, peaceful, and truly fulfilling New Year ahead.With heartfelt thanks and warmest wishes - Scott -
Hi Jane, I hope you are well. Thank you for your contributions. 😇
Thank you for your contribution. Your support means a great deal.
Dear Jane, I hope this message finds you well, I wanted to take a moment to express my deepest gratitude for your unwavering support and generous donations over the years. Your contributions have truly been a lifeline for me, enabling me to experiment with natural products like organic fruits and vegetables. These resources have allowed me to create various pastes and lotions in my ongoing quest to find relief from Hidradenitis. While I have not yet discovered a cure, I am thrilled to share that I have made significant progress. My flare-ups are less frequent, inflammation has decreased notably, and the overall pain has become more manageable. This progress would not have been possible without your steadfast support. Thank you, Jane, for believing in my journey and helping me along the way. Your generosity means the world to me. May God bless and protect you always. Warm regards, Scott x
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.