Let's make a difference together! Hidradenitis isn't giving up on me, and I won't give up on finding a cure. Your share could be the spark that leads to breakthroughs. Join me in spreading awareness and support. Together, we can make waves and bring hope to those battling this condition. Share now and be part of the change!
It's disheartening to find myself back in this situation so soon after just being released. Dealing with Hidradenitis is incredibly challenging and unpredictable. I strongly believe that the government should fund all necessary medications and pain relief. Without ample financial resources, individuals are left to suffer needlessly. It's unfair that someone who has dedicated themselves to a career in healthcare ends up unable to work and live normally due to their condition. Relying on public contributions for essential treatment feels like a dismissal of the contributions made through years of tax payments, leaving me feeling undervalued.
Sorry had to rant, I don't have people around to rant too.
Please send your good energy thoughts my way. Hoping to get out of hospital tomorrow.
Your generosity not only helps me manage my pain levels but also enables me to explore different products and treatments in the quest to find a cure.
Living with HS has been a challenging journey. For so long, I have been merely existing, trapped in the cycle of pain and discomfort, unable to fully engage with life.
The journey with HS has not only taken a toll on my physical health but has also affected my relationships. I have lost friends and experienced betrayal from family who took advantage of my vulnerability.
However, I am starting to find a newfound strength within myself to overcome the darkness that this condition has cast over my life.
Though my skin condition still holds me back from being active outside of my home, I am channeling my energy and passion into creative projects. One such endeavor is "The Essence of Connection," a series of mini shorts that delve into the heart of genuine human connections. Through exploring themes such as self-love, real friendship, integrity, loyalty, and the distinction between authentic love and mere lust, I aim to shed light on the profound significance of these elements in fostering meaningful relationships. Hoping others can learn and benefit from it.
I am finding the will to have somewhat of a life despite the obstacles and I am passionate about making this world a better place, one step at a time. Your continued support gives me hope and strength as I navigate through this journey, and for that, I am eternally grateful.
Dear Supporters,
Happy New Year. I hope the Year 2024 has been off to a great start for you.
It's been some time since our last update, and I wanted to share the strides I've made in managing my Hidradenitis Suppurativa and working towards finding a cure.
I'm thrilled to report that promising breakthroughs in Hidradenitis Suppurativa research have emerged. Your generous donations have directly contributed to supporting these advancements, bringing me closer to a more manageable condition.
I've personally experienced improved pain management, thanks to innovative treatments funded by your contributions. Your support fuels not only my journey but also the hope for countless others battling this condition as I get to share with them everything I learn as well as providing advice for them on how to manage living with Hidradenitis.
How You Can Help:
Donate: Your contribution, no matter the size, makes a significant impact on my mission.
Share: Spread the word about my cause. Sharing on your social media platforms and encourage others to join the fight.
Together, We Can Make a Difference:
The road to a cure is challenging, but with your support, we're making strides every day. Let's stand together in my mission to manage pain and find a cure for Hidradenitis Suppurativa.
Thank you for being a vital part of this journey.
Let's hope 2024 is the year for a permanent Cure.
Gratefully,
Scott
As the year comes to a close, I want to express my deepest gratitude for your unwavering support throughout my journey living with Hidradenitis Suppurativa. Your encouragement and commitment has made a significant impact, and I am truly grateful for your generosity.
With the festive season upon us, I wish you and your loved ones a Merry Christmas filled with joy and warmth.
Thank you once again, and Merry Christmas!
With Love
Scott
Dear Supporters,
I hope this message finds you well. I want to express my deepest gratitude for the incredible support you've shown since I opened this Givealittle page. Your generosity has made a significant impact on my journey with Hidradenitis Suppurativa (HS).
1) Why I am Extending the Page:
Living with HS is an ongoing challenge, and your support has been instrumental in helping me navigate the complexities of this permanent condition. I am extending the page to continue receiving assistance in affording healthier foods that play a crucial role in reducing inflammation. Additionally, your contributions contribute to vital pain relief measures, enhancing my overall quality of life.
2) Other Changes Since Opening the Page:
Since the inception of this page, I have experienced moments of both triumph and struggle. Your donations have allowed me to explore various avenues of relief and treatment, and I am deeply thankful for the positive changes they have facilitated. As we move forward, I am committed to keeping you updated on how your support is making a difference in my daily life.
Once again, thank you for being a pillar of support. Your kindness has made a lasting impact, and I am grateful for each and every one of you.
Warm regards,
Scott
I hope this message finds you well. I wanted to provide you with an update on my battle with Hidradenitis Suppurativa and some recent challenges I've faced.
Lately, my Hidradenitis Suppurativa has been causing me a great deal of pain, making daily activities a real struggle. I had to make a difficult decision between prioritizing my pain relief and taking care of my car's Warrant of Fitness & registration. Given that I don't use my car frequently, mainly for essential tasks like food shopping, nurse, Drs,
I chose to prioritize my health and pain relief.
To avoid taking Bailey, my beloved English Cocker Spaniel, for a walk, I decided to drive her to the beach for some much-needed exercise. However, this choice had unforeseen consequences. I was pulled over by the police and fined $250. While they issued me a compliance notice, I'm struggling to afford even the WOF and registration expenses, let alone this fine.
I want to express my gratitude for your ongoing support, both emotionally and, when possible, financially. These challenges are daunting, but your support means the world to me, and I'm incredibly grateful for it.
If you can, any assistance, whether through sharing this message or contributing to my current financial situation, would be greatly appreciated. Please feel free to reach out to me if you have any questions or would like to offer support in any way.
Thank you for being a part of my support network and for your understanding during this difficult time.
Scott
Your generosity and kindness have touched my heart deeply. The donations you've made have been a lifeline. They've granted me precious pain-free days, allowing me to give back to my community in meaningful ways. My favorite is strolling along the beach, picking up litter, and cherishing the simple joys of life. Your support has granted me these moments of freedom, which I treasure immensely.
Moreover, your donations have enabled me to purchase healthy foods that help keep inflammation at bay. pineapple, raspberries, & pure organic orange juice, which has had a significant impact on managing my condition.
Additionally, I've been able to acquire Thursday Plantation antiseptic tea tree cream, which has proven to be an amazing aid in managing my HS. Your donations are instrumental in ensuring I have access to the tools and resources needed to navigate life with HS as comfortably as possible. Every donation, message of encouragement, and act of kindness, no matter how small, has made a significant impact on my life. Your support has alleviated my physical pain & uplifted my spirit, reminding me that I am not alone on this challenging journey. I must be cautious not to overexert myself to prevent painful flare-ups and abscesses. Your empathy and compassion motivate me to keep pushing forward, one step at a time. As I continue to navigate the unpredictable path of HS your support is a beacon of hope & a source of strength for me. I am truly blessed to have you by my side.
Thank you
Hello,
I hope this message finds you well,
I want to express my deepest gratitude for your generous contribution to my Give a Little page. Your support means the world to me, and it brings me one step closer to managing and raising awareness about HS.
Your contribution is not just a donation; it's a powerful statement of compassion and solidarity. Here's how you can continue to make a difference:
Spread Awareness: Share this campaign with your friends, family, and on your social networks. By doing so, you help educate others about HS, raising awareness that is crucial to our cause.
Financial Support: Your donation will directly contribute to covering my medical expenses, including pain medication and dressings. These are essential for managing the challenges of living with HS, and your support makes it possible.
Advocate for Research: Join us in advocating for research efforts to find a cure for HS. By supporting research initiatives, we can work towards a future where HS is better understood and, ultimately, cured.
Your continued support on this journey means everything to me. Together, we can make a profound impact on the lives of thousands of HS sufferers. I am truly grateful for your kindness and commitment.
Thank you once again for standing by me and helping me make a difference.
With sincere gratitude,
Scott
Hi Beautiful souls,
If you know anyone whom suffers Hidradenitis Suppurative please let them know that I have found that eating Pineapple everyday truly helps with the inflammation that Hidradenitis Suppurative causes. Again it's not a cure but does help alot. Unfortunately
I'm currently out of the CBD oil that I use to keep my pain levels down so I'm experiencing such an awful amount of pain this week so please pray for me; to give me strength to keep fighting for my comfort and of course pray for magical healing.
Take care
Thank you
Scott
It truly warms my heart that so many of you care about my health and wellbeing. The kindness, care and support from people I do not know is such a blessing to me, one that I will never forget.
The last 2 months have be such a pleasure to have lived through compared to usual and that was only possible due to your donations providing me with a better quality of life.
May you all only ever be favoured, blessed and protected by Good energy.
Much love and light,
God bless
Scott
I can't express my gratitude to you all for providing me with a somewhat pain free month. Although I still have the huge flare ups and am constantly draining puss and blood I can focus more not having to experience the total pain that comes with it. So Thank you from the bottom of my heart. I've enjoyed walking around in the sun and picking up litter on my path. It's not much but it's one of many way I can give back to the community.
Thank you.
God bless you all.
Love Scott
Hey everyone,
Today I got out and went to the local beach and collected 2 bags of rubbish.
Just wanted to say a huge Thank you as without your help I wouldn't have been able to do such an activity.
Have a wonderful weekend.
God bless
Scott
Hey Beautiful Souls,
How do I even begin to thank you all for providing me with freedom. I am so grateful to you all, I got my prescription over a week and a half ago as give a little payouts are the following month of donations made in that month.
I must say it truly works wonders with managing my extreme pain levels. Though it's not a cure for my condition and I still leak blood and puss in areas on my body on the daily and having lumps build up in places, taking this oil provides me with more mobility and less restrictions giving me the strength to do more things for myself without experiencing immense pain. It's kind of like local anesthetic but without being spaced out at all. I'm completely in control, It provides me a life. I can focus on doing basic tasks without feeling pain, for example brushing your teeth seems so effortless right, but for me doing that causes pain in my armpit(s), Depending on size of the flare It's like having a golf ball in your armpit and when you move it's feels like you get stabbed with a knife.
So you can imagine what it's like for me showering, moving about vaccuming the house, general cleaning ect.
Thank you for helping provide me with such freedom over the last week and a half my Spirits are lifted,
I look forward to having a promising future and finding a cure for myself and anyone else suffering from this awful autoimmune condition.
Have a wonderful and blessed day
May God bless you and favor you all.
Much love and light
Scott
Thank you all so much for the donations I received last month. I have just received the funds and I will be off to see my doctor at 3pm today to get more oil. Honestly I am so grateful. This means I can embrace this coming month knowing I am going to be in less pain. I'm so excited, y'all have no idea how big of a deal this is for me. The pain is just so overbearing majority of the time that I can't do anything, just getting out of bed to go to the toilet is a huge painful energy draining mission, But with this oil it gives me hope. It provides me with more freedom and a will to live. Because to be honest with you all, there are days where I just simply want to die.
Each and everyone one of you holds a special place in my heart and I can only repay you by staying alive and fighting for a cure.
God bless each and everyone of you.
Much love
Scott
Just a quick update from the other day. Thank you for your prayers. The flare in my groin popped which meant I avoided hospital woohoo, still swollen and am on antibiotics to ensure no infection arises. Thank you all. Sorry for the graphic picture. Thank you for your understanding. Much love and light
Wow I'm blown away by the amount of support I have received over the last few days. From Donations and from truly touching messages. I'm so Overwhelmed. I am longing for a future where I don't have to suffer in pain daily, but thanks to your donations I can afford pain relief and also I can buy healthy groceries, which means I can experiment with foods and trail what helps and what doesn't , for instance I know cucumber and raspberries and pure orange juice are a great antiinflammatories and do help me alot however $7 for a cucumber ect is outrageous and I only get $80 for shopping after I've paid rent and my utilities bills so I truly appreciate all of your help.
Though you don't experience Hidradenitis Suppurative yourselves I do feel cared for and i feel like I'm not going through this horrific journey alone any more so thank you so so much.
Right now I'm dealing with a flare in my groin, and my armpits but my groin is making it extremely painful to walk. I'll upload a picture. Hoping it will burst today and not get any bigger otherwise it's off to hospital again for another surgery. Which is like a routine now. 😩 So please pray for healing 🙏🙏🙏
Please don't forget to share my story, I really need a cure because the pain is unbearable majority of the time. Thank you again, I pray for each and everyone one of you.
Much love and light
God bless you all.
Scott
I am reopening this page due to the condition is long life and I need all the help I can get.
Thank you all so much for your support so far. It's been a rough journey where times I just want to give up but I'm here to stay.
Much respect and care to you all. Here's to finding that cure.
They say when you loose everything, God is up to something, he has something great coming to you.
Well I totally believe that my time is coming. I had a house flood and lost pretty much everything. And I'm still remaining positive. I have a bed and a tv and a sofa. It feels so strange restarting life again. Like a uni student haha.
I mean I live everyday in constant agony with so much inflammation and blood and puss oozing out of my body on the daily except from the days where I have the CBD oil. That stuff is like my best friend. It helps relieve so much pain that I can actually enjoy watching a movie in comfort and not be constantly reminded of the pain. I live for those days, I really do. Thoses days are what I look forward to the most. A very simple life, don't get me wrong I'd love to be out swimming, rock climbing doing all those fun activities but my condition doesn't allow me to have that much freedom of mobility so on the days when I have the CBD oil I find so much joy just being able to relax and have full attention to focus on what I'm doing and not being constantly reminded of how painful and difficult my life is.
Thank you for providing me with that freedom of mobility, it is wasn't for your donations I wouldn't be a strong willed as I am. You guys keep me alive. I can never not feel gratitude for the help you all have provided.
Have a wonderful day and enjoy The month of March. Let's hope we get a delayed summer 🌞
Much love Scott
Hi fellow earth angels 😇,
I hope you are all doing well.
Finally back in my house. Lost a lot of furniture and sentinal items. My Dog is happy to be home, she's been shaved as she was really matted and I took her to get bathed. (Was extremely painful doing so with a huge flare in my armpit but I got through it) I will upload a picture of my Dog bailey.
Hearing a cyclone is approaching. I really can't go through another round of flooding so praying that doesn't happen.
My health hasn't been the greatest and the added stress from my home flooding has made me flare up more now than ever before. On top of this painful condition I am currently dealing with Major toothache on 4 teeth. Lord needs to provide me a break. Why do good people get to experience the hardships of life. I'm figuring out what I am supposed to learn from this.
Please, I need all the love and support I can get right now. Please share my page where possible, I have two now.
One for HS condition and the other is for support from the recent flooding.
Love and light
God bless
Scott
Hi all.
I have a separate page for help with the aftermath of the flooding.
Please could you share this new page.
Currently living cramped in my car. On top of this painful condition. I need showering badly, I'm covered in blood and puss and my dog is in desperate need of a groom. She stinks and has got matted hair due to getting saturated by the flood. Bless her heart. Feeling helpless but things will get better.
Please share https://givealittle.co.nz/cause/help-scott-recover-from-the-flood
Kind regards and God bless
Scott
Hey everyone. I hope you are all doing well and those whom reside in Auckland as safe and sound.
My house unfortunately flooded so currently staying in my car as have no where else to go and have already paid rent this week so have nothing. My dog is not Happy being confined to such a small area. I'm trying to remain as calm as possible so I don't have a major breakout in flares.
Please Pray for us.
Scott
I just wanted to take a moment and Wish you all a joyous and cheerful Christmas and a prosperous New Year. May the brightness and happiness of holiday season fill the coming year with beautiful moments of joy for you all, This season is a time to be Thankful and celebrate the birthday of Jesus . On that note Thank you for your unconditional support in my cause . I can't express how grateful I am to you all.
Merry Christmas to you and your family.
Much love Scott
Heavenly Father, I thank you for loving me.
I thank you for sending your Son, Our Lord Jesus Christ, to the world to save and to set me free. I trust in your power and grace that sustain and restore me.
Loving Father, touch me now with your healing hands, for I believe that your will is for me to be well in mind, body, soul and spirit.
Cover me with the most precious blood of your Son, our Lord Jesus Christ from the top of my head to the soles of my feet. Cast anything that should not be in me. Root out any unhealthy and abnormal cells. Open any blocked arteries or veins and rebuild and replenish any damaged areas.
Remove all inflammation and cleanse any infection by the power of Jesus’ precious blood. Let the fire of your healing love pass through my entire body to heal and make new any diseased areas so that my body will function the way you created it to function.
Touch also my mind and my emotion, even the deepest recesses of my heart.
Saturate my entire being with your presence, love, joy, and peace and draw me ever closer to you every moment of my life.
And Father, fill me with your Holy Spirit and empower me to do your works so that my life will bring glory and honor to your holy name. I ask this in the name of the Lord Jesus Christ.
Amen
3 years ago I gained the strength and courage to be brave and exposed my biggest insecurity, my hidden painful skin condition I was hiding from everyone. I thank everyone that has helped share and spread awareness to #HidradenitisSuppurativa and for supporting me. It's an ongoing battle to find a cure but it's one worth fighting for! I am a warrior!!
Please continue to share, the pain is unbearable at times, praying I will have a Pain free Christmas and getting the word out is so important to me in finding someone whom perhaps can find a cure.
Thank you and May God bless you always.
Have a wonderful and safe Christmas
Much love
Scott
I hope everyone is doing well and getting excited for Christmas.
I'm not doing too great. Been fighting infection after infection with constant flares all over my body, causing me to be so drained of energy and in extreme amounts of agonizing pain.
I'm On the waiting list for yet another surgery, though I'm getting pretty tired of having surgery for it only to reoccur shortly afterwards.
I understand that with this pandemic and extreme cost of living that everyone is in a difficult position.
So I'm not requesting donations but instead I simply ask for your prayers in healing.
The power of prayer is greater than one can imagine and I severely need all the prayers I can get.
I believe that one day I will be able to live a pain free normal kind of life and I cannot wait for that day to arrive. I truly would never wish for anyone to experience the condition that I have to endure and I pray that those that do suffer from this painful, life draining condition that you shall all be healed in the name of Jesus Christ our Lord. Amen
Thank you.
May God bless you all.
Scott
I'm agony and Waiting for surgery. Right on the bottom of my spine. Can't get comfortable.
Thank you all, for your support over the past few months. These drops really do make so much of a difference to my life. Still hunting for a magical cure however these drops take my pain levels down from 9 to a 3 and being able to do daily activities such as showering and brushing my teeth, walking about, driving to my nurse and Drs appointments and going food shopping without being in complete agony has been a blessing. I'm starting to freak out as I'm running low on the drops and I'm dreading having to go back to suffering. Especially on top I have to move house soon. The stress is causing more flare ups.
So I kindly ask if you could share my give a little page in hopes to reach further people.
God bless you all,
Have a heavenly weekend.
Hi everyone,
I cannot express how grateful I am for your support, I've been able to have a really great month with minimal pain having being able to pay for the cbd medication. The condition itself is still here with some major flare ups in my armpits and butt, but this pain medication really helps improve the pain so much that I can concentrate on doing daily activities without being in excruciating amount of pain. I am forever grateful and wish you all the blessings that life has to offer. Have a heavenly day. God bless.
That's great news ,I pray my page will get the same support,as this hidradenitis suppurativa is so horrible that we suffer with
Hi all, I hope you are all well, I just wanted to take the time to say thank you for you support. It has helped me through some tough times. Unfortunately I'm out of medication and can't afford more it's been a month and I'm in agony. Currently dealing with Both of my armpits that have flared up more and constantly draining puss and blood, my bottocks has 3 large sores and my groin is flared with small leakage. I'm feel very deflated and defeated by this condition and have been in full isolation since before COVID-19 was a thing! I honestly don't know how much longer I can take! I just want a cure so I can live a pain free normal life. I am currently on the waiting list for another surgery procedure ( this is just an ongoing cycle of draining which draines the pressure that is applied to my HS sores, it doesn't remove it, it just helps relieve some tension but not all!) So I'm so over living this life.
Please do share my story to raise awareness for this horrific condition that is draining the life out of me.
Thank you for your continued prayers and support.
Hi everyone, I hope you are all well.
Just updating to let you all know that I have surgery on Wednesday morning. Not looking forward to the painful recovery process. Having the nurses pack the hole daily was complete agony last time. Please pray for me. I will post again when out of surgery to let you all know how it went.
Have a wonderful and blessed day 🙂
Hi all, where do I begin!
I hope you are all doing well and keeping safe.
Thank you all so much for your support. It truly means alot. Though you don't experience the complete agony that Hidradenitis Suppurative brings I do feel cared for and made to feel like I'm not going through this alone any more so thank you so so much.
Please don't forget to share my story as I really need a cure because this pain is unbearable the majority of the times. Thanks again,
God bless
Hey y'all, I hope you are all safe and well.
Just a wee update to let you know I'm booked in for surgery for cut into one of the HS lump that is on my lower back, spinal. pilonidal sinus. It's very painful to sit down or lay down so struggling to find some comfort right now. Prayers are welcome always, God bless
Well thankfully it popped and I don't need to go to the hospital! Phew 😅 what I can say is that it's still friggin sore as f**k
Hey everyone, just a quick update to say thank you for donating, means so much to me.
this guy popped up on my leg yesterday. As you can see It's throbbing like crazy! Really not wanting to go to hospital! So praying it doesn't get worse.
Stay safe, it's crazy out there! God bless
From the bottom of my heart I truly Thank each and every one of you for supporting me on my journey.
I'm truly blessed. I got some new pain drops and I can say I'm feeling a little more at ease today still in pain and I have more flare ups but it's much more manageable.
I could not be in this situation if it wasn't for you all so thanks you for your continued support and prayers.
Much love, God bless.
Scott
