Healing myself
Nationwide
Hello to all who take the time to read and donate.
I have been off work for three years with fluoroquinolone toxicity causing ongoing severe neuropathy/ tendinopathy and multi system adverse reactions causing hypersensitivity all from an antibiotic called ciprofloxacin.
Acc accepted my claim in september 2023 but to date have not offered me any treatment.( my case is very rare and they haven't accepted many with my broad reaction list)
Cipro is prescribed around 30,000 times per year in nz with 1 in 1,000 having severe reactions....this is being over prescribed and under reported and is reserved as a last line Defence antibiotic in nz yet health organizations have not yet responded/ acknowledged this diagnosis.
This is my plea to explore international options and have a look into mthfr and gene sequencing tests and with some luck find a specialist who will first understand the mechanism of toxicity
( mitochondrial cellualr damage, atp etc)secondly happy to write a referral to my health insurance stating the benefits of the clinic in Australia who have provided me with their treatment protocols which acc will not engage with nor fund...
I have asked Acc what their best understanding on best global practise looks like for this well documented disability....I have had physio/ pain specialist programs/phycology/ and mirimiri.... yet nothing in regards to specialist testing/ investigating for ongoing causation of symptoms or alternative therapy.
I want to get my life back ❤️✌️
All funds raised will go towards specialist consulting, appointments and testing to explore the treatment options.
Some success 16 March 2026
Good news!!
Have managed to get in with the immunologist who acc originally denied the ongoing funding for investigations into treatment options in nz and did not agree with it was the next best step.
The immunologist reviewed all relevant information and has written a letter of recommendation with the trial of iv infusions and comprehensive gene testing for a clinic in Australia.
I now do not need to reach the full 4k target as there was many tests I was going to get done here but are inclusive in the clinic in Australia.
Thank you all and will keep you posted ❤️✌️
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