Seizure monitor for our 13yr old daughter

Cause page created in the Health category by Kushla Anne Patrick for "My 13 year old daughter"


$3,052 of $5,000 goal
Given by 96 generous donors in 7 weeks
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Needing to raise funds for bed seizure mat/alarm, and few other items to keep our daughter safe during a seizure.

  Nationwide

My daughter has been diagnosed with tonic-clonic seizures. We have discovered this has been going on for a while without our knowledge at night. We really need a bed seizure alarm so we can all relax knowing we aren't missing anything that could put our beautiful daughter at risk. She is 13 and very scared after the last few days.

We are looking at needing around $3k to keep her safe.

We have been told to go to the nz epilepsy page to get support. On their page it tells you the cost of a bed alarm and gives the the links. These are not funded.

http://www.smartcaller.co.nz/high-care/epilepsy-safe-bed/

The above alarm itself costs $1500, and we are also trying to find the appropriate wrist alarm for when school returns to keep her safe. These are just some.of the costs we are hoping to cover with this page, she is also being put on a epilepsy keto (MAD) diet to help reduce seizures.

Thanks so much for your help.

Kushla Anne Patrick's involvement (page creator)

I am mum and full time career to my 13yr old daughter whos very recently been diagnosed with epilepsy

Use of funds

Bed seizure alarm system. (http://www.smartcaller.co.nz/high-care/epilepsy-safe-bed/ )

Bracelet alarm (Embrace2 watch alarm) unless we find a better watch.


Latest update

Update image

Photo just because   21 February 2021

Posted by: Kushla Anne Patrick

Selfie at school. My beautiful strong smart girl

Read 7 more updates  |  Share this update


Latest donations

Tracey
Tracey on 16 Jan 2021
Kia kaha whānau sending an abundance of love and healing. Kia piki to ora 💖
Private
Kushla Anne Patrick

Thankyou very much cuz

Kushla Anne Patrick
Jade
Jade on 16 Jan 2021
Good luck little girl.
$20
Kushla Anne Patrick

Thankyou

Kushla Anne Patrick
Guest Donor
Guest Donor on 14 Jan 2021
Private
Kushla Anne Patrick

Aww thankyou

Kushla Anne Patrick
Sarah
Sarah on 13 Jan 2021
Kushla not only worries about her own precious daughter, but has supported me with my own. A true kind soul. I hope this family gets the equipment they need
$50
Kushla Anne Patrick

Thankyou

Kushla Anne Patrick
Elizabeth
Elizabeth on 13 Jan 2021
$100
Kushla Anne Patrick

Thankyou so much

Kushla Anne Patrick

Who's involved?

Kushla Anne Patrick's avatar
Created by, and paying to a verified bank account of, Kushla Anne Patrick on behalf of My 13 year old daughter

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This page was created on 1 Jan 2021 and closes on 1 Apr 2021.
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