A bit of a late update as things have been so full on the past 24 hours. Shane's suffering has now come to an end. He sadly left us early hours on Saturday morning. So sad for us all but happy he was at peace and in a good state when he took his last breath.
Thank everyone who has supported this page and shown love to our family. We really feel the love and appreciate everything.
Since we came to the hospice things have been bad. They told us when people present with major brain bleeds they're only expected to have days left or even hours because anything sudden could happen? So we had to prepare ourselves for that. The amount of friends and family that have came through for us is amazing.
Here we are 2 weeks later and it has been bitter/sweet. Shane's brain is deteriorating but his heart is young and so strong. That plus his will power to fight is the only thing still keeping him here.
Grateful for more time we have had to spend with Shane but his quality of life is so poor and its harder having to see him the way he is now.
He's usually so full of energy and all he wants to do is get out of bed and go for a walk but it's just not possible because of his stroke and fatigue its unsafe for him.
Being bed ridden is miserable for him and its so sad not being able to give him what he wants.
This whole situation just sucks!!
Thank you everybody for all your support. Things have gone down hill fast. Shane is now set up at the Mary potter hospice and is still fighting hard to stay with us. He's very sleepy its hard to keep him awake but u see his eyes always trying to open because he can still hear everything around him lol. Me (Hailey) and our children have been living out here right by his side and we will cherish all the time we have left with Shane❤
