Show your Heart for Xavier

This is our beautiful little Xavier Peter Batt. He was born into the world on January 2nd 17 with his umbilical cord twice wrapped around his head and swallowing his maconium which has led us on a road of complications. All within his first week of entering the world he has been resuscitated, struggling to get his platelets to increase, rushed to Wellington hospital To have his blood transfused and exchanged after Hemoglobin became too high. They have Diagnsed Xavier with Atrioventricular Canal Defect which is a large hole in the center of the heart. Its located where the wall between the upper chambers (atria) joins the wall between the lower chambers (ventricles). This septal defect involves both upper and lower chambers. Also, the tricuspid and mitral valves that normally separate the hearts upper and lower chambers aren't formed as individual valves. Instead, a single large valve forms that causes the defect in the wall between the two sides of the heart. Xavier will need open Heart surgery at Starship Hospital to help repair the defect.

Little Xavier is in the Intensive care unit in Wellington hospital while Xavier's parents Clifford and Sam travel back and forth from Lower Hutt daily.

We are asking for any donation big or small to help with Clifford and Sam with transport to and from hospital/ accomodation, food etc just to help make life a little easier on them, the eventual surgery that will be performed in Auckland while Clifford takes time from work to let them be close with their little man through this tough time.

It's not a question of how much we love you Xavier, we will fight this fight with you, beside you and we will fight back whatever your facing together.

!!UPDATE!!

So today we have found allot of answers about our beautiful special boy Xavier.

Despite his amazing head of hair and cute adorable looks and charms. (Always filling his nappy when Dad is about to change him)

He has a syndrome known as Williams Syndrome, meaning he is missing some of the genes from his #7 Chromosome, directly relating to the elasticity of the cells in his body.

Meaning that my cute adorable little man is in for a life of monitoring and checkups regarding his heart...

On top of this news, we also learned that his heart is starting to show signs of strain and stress, his little heart is officially in the early stages of heart failure.

Along with his lungs which are showing signs of stress, little guy struggles to keep feeding but he gets so exhausted he falls asleep while feeding off mummy. Though he can quietly follow your face around the room as you change him and clean him.

I'm so proud of my little boy who keeps trying no matter how exhausted he gets because his heart is having to work twice as hard to do anything, its the reason hes been so quiet.

Its simply too much energy to cry out for a feed or a change of nappy. We are praying for the surgery to come soon so our little man has a chance to make as much noise as he wants.

We thank you all for the continued support you have given, this has been an extremely hard and heartbreaking time for Samantha Batt and myself, without the support of family who have taken time off from their busy lives to help us through this troubled time we would really be the worse for wear right now.

Today brought answers and the start of a plan for Xavier's life, we are quite happy for him to stay in hospital now that we know why he needs to be there, in fact my wife Samantha Batt has finally been given a room to stay with our little man for our long hospital time ahead.

Thank you everyone for all and any support you have given we will never forget.