Show your Heart for Xavier

Just another update on how the little man is progressing.

Been upgraded with a $1200 feeding machine (Luckily its free on loan for the moment) means we lose out on 20ml of milk each feed but hes less likely to spill compared to the gravity fed syringes.

In terms of the heart, he is waking up very sweaty and has big rip clenching breaths when he cries. All the signs we were told about for his heart failure will not be long now before he gets his drugs to help his heart pump more and to thin his blood.

Its heartbreaking to know that he is struggling and yet we are powerless to help or make things easier.

We have the consultants/doctors from Auckland flying in on the 10th of Feb to consult us about the surgery and hopefully get an update on when he might get it.

Sooner the better, his heart is literally breaking.