Dylan's Journey with Spinal Muscular Atrophy

I Amber, have a son (Dylan aged 2) who was diagnosed with Spinal Muscular Atrophy type 2 in January 2014. what is SMA you ask? Well please have a quick read of this and you will see http://www.smanz.org/what%20is%20sma_basic.htm

I am now Solo parent due to leaving an abusive relationship, I am also unable to work as last time i tried and put Dylan in daycare he got really sick and we ended up in hospital with him on oxygen trying to fight bronchiolitis after 2 weeks up there he become better and we got to go home so i stopped work and pulled him out of daycare so we wouldn't risk him getting sick again.

we get help from the government but it isn't enough to get a new vehicle and paying our bills so we are asking for any help we can get.

We can't rely on public transport as if Dylan gets sick we need to get him to the doctors or hospital asap as it can affect his breathing, I am currently using my mothers car while she is recovering from shoulder surgery which is great as she is also disabled so Dylan's manual chair fits right in the boot but we now have Dylan's electric chair which has better support for him then his manual chair a van wouldn't only benefit us with Dylan's wheelchair it would mean it would be a lot easier for me to get him in and out of the car as you can imagine lifting 14kgs of dead weight in and out of a sedan isn't to easy on my back and with him getting heavier its just going to get worse.

we are also trying to get into a rental property of our own but we have to start from scratch so any extra money raised will be put towards house furnishings as we are currently living with my mother in a 3 bedroom house along with my younger brother so the house isn't really big enough for 2 wheelchairs and all of my sons equipment he has for everyday use.

Also to keep up to date with how Dylan is doing please check out our Facebook page https://www.facebook.com/pages/Dylans-journey-with-SMA/549141658524823

There is a Video on there of Dylan using his new electric chair :)

Thank you for taking your time to read this it means a lot and i really appreciate it.