Daniel needs help

Our son Daniel was born with Wiskott-Aldrich-Syndrome and has lived with it for 16yrs not letting it shadow the amazing, beautiful boy he is. Daniel is friendly, caring and has never let it bring him down. (WAS) is a rare genetic immunodeficiency that keeps his immune system from functioning properly. It also makes it difficult for his bone marrow to produce platelets, making him prone to internal bleeding.

Daniels condition has now progressed to an autoimmune disease (Lupus, Vasculitis, inflammatory bowel disease). The Lupus and Vasculitis was not picked up during previous testing in NZ and now a stem cell transplant must be done before it attacks his organs causing irreparable damage. This was found when we took Daniel to Thailand to be seen.

The doctors are continuing to treat the symptoms but the only cure and real hope for Daniel is a Stem Cell Transplant now. I found and contacted a specialist on (WAS). Prof Michael Albert in Munich, Germany.  Prof Albert contacted our immunologists in NZ and the result of that conversation is that Daniel needs a transplant.  It is a terrifying thought of what Daniel will go through in the future and that is why we are hoping to have the procedure done in Milan, Italy as that is where the BMT specialist is located. The cost of the transplant is €322,900 euro, plus outpatient medication for Daniel. During this process Daniel will spend 4-6 weeks in hospital and then 6 months or more as an outpatient with weekly check-ups twice a week.