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Daniel needs help

  • Here in Italy

      18 March 2025
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    Sorry for the lack of post, it’s taken a lot of work to get here. We are finally in Italy and Daniel had his first appointment yesterday at the SAN Raffaele Hospital. Francesca and Federico were so amazing and the hospital was great. Today will be a long day of blood test and scans but it’s so well organised and Federico will be with Daniel all the time to make things easier. I hope to post updates more frequently from now on.

    Thank you to everyone for your support.

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  • Thank you all ❤️

      18 September 2024
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    Thank you all soooo much. Daniel will have 8 teeth extracted on 15 October. They are removing the impacted wisdom teeth and the teeth around them to prevent any infection during his transplant. We are hoping he doesn’t need a platelet transfusion because he has built up some antibodies to platelets. So when that is done we will have a much idea of when we will be going to Italy.

    Thank you all again for your donations and kind words. We couldn’t have done this without your amazing support. I will keep you up to date.

    Feel free to contact me directly at: daniel@greenapples.co.nz

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  • Dental Extraction

      20 June 2024

    Hi everyone, Daniel is just waiting for his impacted wisdom teeth to be removed before the transplant. They need to be removed first to make sure they don’t get infected after transplant.

    It has been a bit frustrating waiting for that to be done because his transplant needs to happen this year.

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  • Waiting for teeth to be extracted

      2 June 2024

    Daniel now has impacted wisdom teeth that have to be removed before any transplant is done. We are hoping they will be removed very soon because his transplant has to happen within the next 6months. He can’t have a transplant while he has impacted wisdom teeth due to the risk of infection.

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  • More Blood test

      27 April 2024
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    These blood test were a bit easier than the last one.

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  • German Specialist update

      27 April 2024

    Today 27 April I received an email Dr. Michael Albert from ludwig maximilian university hospital of Munich. He spoke to Dr. Aiuti from Milan regarding Gene therapy. He said Gene Therapy would be a very good option for Daniel so that is our target.

    Thank you to everyone.

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  • Possible changes of location

      22 April 2024

    So Daniel will most likely be having his transplant in Milan Italy.

    We have been speaking to 2 Italian specialists at SAN Raffaele hospital about gene therapy which uses his own bone marrow and is the treated before being transplanted. The problem with gene therapy is it cost $2 million plus the transplant cost. The Italian specialist and German specialist are having a meeting on Wednesday 24th April regarding his treatment.

    We would love to do gene therapy so we are trying to get as much help as we can.

    If anyone has any ideas please feel free to contact us.

    Thank you to everyone for their support.

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