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Daniel needs help

  • More Blood test

      27 April 2024
    Main image

    These blood test were a bit easier than the last one.

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  • German Specialist update

      27 April 2024

    Today 27 April I received an email Dr. Michael Albert from ludwig maximilian university hospital of Munich. He spoke to Dr. Aiuti from Milan regarding Gene therapy. He said Gene Therapy would be a very good option for Daniel so that is our target.

    Thank you to everyone.

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  • Possible changes of location

      22 April 2024

    So Daniel will most likely be having his transplant in Milan Italy.

    We have been speaking to 2 Italian specialists at SAN Raffaele hospital about gene therapy which uses his own bone marrow and is the treated before being transplanted. The problem with gene therapy is it cost $2 million plus the transplant cost. The Italian specialist and German specialist are having a meeting on Wednesday 24th April regarding his treatment.

    We would love to do gene therapy so we are trying to get as much help as we can.

    If anyone has any ideas please feel free to contact us.

    Thank you to everyone for their support.

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