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Stop Malaena's seizures 😢

  • Don't judge my child     28 January 2020
    Posted by: Gerry Carino

    Ive had some pretty had days lately, ok maybe weeks. I hear my Mum say its seizure activity which is lots of little seizures one after another. Its like turning a light switch on and off really fast. I get super confused sometimes I get really angry and other times I get really sad. I don't remember any of it, mum says that sometimes I say things that aren't very nice.

    Malaena's World... going out sometimes can be really hard especially seizure days. Ive never had to defend my children in public, but twice in one week!!! Yes she looks like every other child, but then when she's having back to back seizures and yelling, screaming, kicking she can look like she's having tantrums. I heard a parent say to her daughter thats how you behave when you are naughty!! I would normally just walk away but then when I heard her say "that girl is naughty and her parents shouldn't let her talk like that"

    ME actually

    "don't judge my child as a naughty girl,

    don't judge my child because she's yelling

    don't judge my child because she's hitting out

    don't judge my child because you don't walk her path

    don't judge my child because by the time you have judged her she's had over 20 seizures!!!

    She looks like everyone else but she's NOT

    Broken parent moments

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  • Ben Harper Raffle tickets     13 January 2020
    Posted by: Gerry Carino
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    Raffle ticket sales are going well. Thank you to all those that have brought a ticket. Still tickets available 😍

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  • Wow! We are flying      6 January 2020
    Posted by: Gerry Carino
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    How amazing are you all thank you so much for your support so far. We really appreciate it. All the sharing of Malaena's page also.

    Sending love to you all.

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