Don't judge my child
28 January 2020Ive had some pretty had days lately, ok maybe weeks. I hear my Mum say its seizure activity which is lots of little seizures one after another. Its like turning a light switch on and off really fast. I get super confused sometimes I get really angry and other times I get really sad. I don't remember any of it, mum says that sometimes I say things that aren't very nice.
Malaena's World... going out sometimes can be really hard especially seizure days. Ive never had to defend my children in public, but twice in one week!!! Yes she looks like every other child, but then when she's having back to back seizures and yelling, screaming, kicking she can look like she's having tantrums. I heard a parent say to her daughter thats how you behave when you are naughty!! I would normally just walk away but then when I heard her say "that girl is naughty and her parents shouldn't let her talk like that"
ME actually
"don't judge my child as a naughty girl,
don't judge my child because she's yelling
don't judge my child because she's hitting out
don't judge my child because you don't walk her path
don't judge my child because by the time you have judged her she's had over 20 seizures!!!
She looks like everyone else but she's NOT
Broken parent moments
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Sending you and your lovely girl a big healing hug. Please explore every option and avenue out there. There are solutions that can help and make a big difference - do not believe negative statistics. Meanwhile try to think of other things and just live in the moment. I hope you find the good people in this world and can put a lot of distance from the less good ones who do not understand the challenges. Sending strength and positivity.
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Sending you and your lovely girl a big healing hug. Please explore every option and avenue out there. There are solutions that can help and make a big difference - do not believe negative statistics. Meanwhile try to think of other things and just live in the moment. I hope you find the good people in this world and can put a lot of distance from the less good ones who do not understand the challenges. Sending strength and positivity.
