Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
Wellington
Magnus is a super happy, bubbly 2 year old that is just about to become a big brother with a life time of dreams ahead of him, when last month his family was delivered the devastating news that he has a 9cm neuroblastoma growing from his right kidney area which has spread to other areas of his body.
This amazing family are now navigating the fact that their toddler has stage four neuroblastoma which is an aggressive and rare form of childhood cancer, 38% survival rate. There are only about 12-20 children diagnosed with this cancer in NZ every year. The most innovative treatments (e.g. Proton therapy) and some promising drugs are overseas and very expensive.
Treatments here in NZ include, intensive chemo, radiation therapy, stem cell transplants, surgery and immuno therapy. Generally all these treatments can have severe and long lasting side effects which can include hearing or vision loss, organ damage, or developing secondary cancers or leukemia at any time.
Magnus and his family would love to be able to explore overseas treatment options, buy products for Magnus that will enhance his comfort and recovery. As well as be able to organise support to be with them throughout the treatments, and when their second baby joins the family in April 2025.
Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
We are the Childspace community that surround Magnus and his whānau.
The money will be used to be able to afford the best available overseas treatment, drugs and technology. This includes surgery, proton therapy and immunotherapy (Naxitamab), as well as products to ease Magnus’ pain and enhance his recovery.
Round #4 and some encouraging news 11 February 2025
Today we have finished our two-day, but very intense, chemo round #4. Our little warrior was amazing, plugged to the machine for 48 hours nonstop. His appetite has dropped significantly, but grapes are an all time favourite and an interesting craving for fried Kumara emerged this round.
The week isn't over yet, we will have tomorrow 'free', and some other tests coming up on Thursday and Friday.
Now the encouraging news: We have received the report of the ultrasound we did last week and it seems the tumor has not progressed and maybe even shrunk a bit! It's hard to tell from ultrasound images but we take this as a win🙏 💪
Our deepest gratitude to all our existing and new supporters!
Arohanui, lots of love
Magnus, Diana and Mario
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