Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
Wellington
Magnus is a super happy, bubbly 3 year old that has just become a big brother with a life time of dreams ahead of him, when in October 2024, his family was delivered the devastating news that he has a 9cm neuroblastoma growing from his right kidney area which has spread to other areas of his body.
This amazing family are now navigating the fact that their toddler has stage four neuroblastoma which is an aggressive and rare form of childhood cancer, 38% survival rate. After the latest scans, his prognosis for survival has dropped.
Treatments here in NZ include, intensive chemo, radiation therapy, stem cell transplants, surgery and immuno therapy. Generally all these treatments can have severe and long lasting side effects which can include hearing or vision loss, organ damage, or developing secondary cancers or leukemia at any time.
Magnus and his family want to be able to explore new treatment options from overseas, additional to treatment available in New Zealand, so he will have a better chance at survival and recovery. They also need to manage the day to day that brings additional costs due to his disease and they want to be able to buy products for Magnus that will enhance his comfort and recovery.
Please help us wrap around this family and give Magnus the opportunity to grow up to be the big brother that he deserves to be.
We are the Childspace community that surround Magnus and his whānau.
The money will be used to be able to afford the best available overseas treatment, drugs and technology. This includes surgery, proton therapy and immunotherapy (Naxitamab), as well as products to ease Magnus’ pain and enhance his recovery.
Early summer update 8 December 2025
Hello everyone,
We've been enjoying these past two weeks of early summer and it's easy to pretend everything is fine and normal. We've had lots of Playdates, he's a great little gardener, caring for his tomatoes and other plants. He's calling himself "farmer Magnus" and when he prepares a salad in the kitchen he's "Chef Magnus". His Oma is his best buddy in crime. It's very sweet to watch.
Magnus has recovered a lot of energy and weight. The new drug and radiation to his head show some effect, the eye is moving back into its socket. He's still blind on that side and it might stay that way.
We're very frustrated with the medical team at the moment. We had asked to schedule radiation to his new spot on the right jaw to prevent what happened before: rapid growth, tumor invading eye socket and causing blindness.
But he's in palliative care now, they don't want to be proactive, only reactive to ensure "quality of life". We're not sure what they mean by saying that. Last time he lost his sight, he was in excruciating pain for weeks and losing the vision of his other eye would surely not contribute to his quality of life either.
Magnus has already decorated his Christmas tree and stockings are hanging by the chimney ready for Santa to pay a visit soon.
We wish you all a lovely pre-Christmas time with sun, beach or snow, wherever you are. Thank you for being part of his journey for so long. You're amazing.
Arohanui
Magnus & family
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