Support 2 year old Magnus and his family fight his stage four cancer. - Updates

Some amazing things up for auction

7 December 2024

https://www.trademe.co.nz/a/search?member_listing=863510

We are so grateful to everyone for the support that has been pouring in for Magnus as he starts his journey. I know that he is in the thoughts and prayers of more people than we will ever know and that is amazing.

We have been been putting together an amazing fundraiser action over the last few weeks and have finally got some listed please take a look there are some real treats to be won. This weeks listing include a signed black caps jersey, Boomrock lunch for two, sky stadium membership and so much more! There will be more auctions put up over the coming weeks as well.

https://www.trademe.co.nz/a/search?member_listing=863510

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Hickman line insertion successful

5 December 2024

Letting everyone know that Magnus has been through the Hickman line insertion, which will allow to put meds in during quemo therapy, take blood samples, perform transfusions if needed, amongst other things.

This line sets the beginning of the marathon we’re embarking on, and will change his and our lives.

Crossing fingers so he’s not too upset when he realises the line is there.

Thank you again to everyone who has been supporting us in any way. Please keep doing it and share this page as much as you can.

Sending love to all!

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Some good news

4 December 2024

Yesterday we received the results of Magnus' MIBG scan. And there are no new nasty surprises! His main tumor grew in the past month (approx. 1 cm) but other than the bone marrow involvement, about which we were aware already, there were no other metastases visible. We take that as a tiny win!

Diana also had her 20 weeks anatomy scan and we're happy to report that all is well with Magnus' little sibling to be - size is bigger than average. To connect with Magnus' experiences before big tests, Diana pretended to be nervous about the scan and asked Magnus what might help her and he said "Mama, deep breaths and take my hand, I'm here for you" 🥹❤️

He also took it very bravely when we told him that today they want to do another blood test, it will hurt a bit but he can choose if he wanted it taken from his arm, hand or thumb. He decided for the thumb and declared to firmly tell the doctors "not from the arm!" Our little warrior!

We just had the cardiac ultrasound and he was a champ!! He did so well. Even gave the technician a high five. 💪

Tomorrow morning is the Hickman line operation. Unfortunately we're on the acute list again (means delays can happen) but hope he doesn't need to go without food for more than 12 hours yet again! Wish us luck 🤞 🍀

We've seen the new comments and donations from the past days and can't thank you enough for your support! 💗🙏

Arohanui, lots of love

Magnus, Diana and Mario

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04/12/2024 by Alan

Lots of love and good lucks! Magnus you are doing great and even got to see the rescue helicopters!

Recharging energies - thank you Hannah & Canterbury West Coast Air Rescue team

2 December 2024

To balance out the past week, this weekend was full of laughter, fun and relaxation.

Magnus' energy was back up high thanks to the blood transfusion and Saturday was dedicated to strolling around with the grandparents (who have supported us enormously so far), taking the tram and discovering the markets.

Then came adventure Sunday! A heartfelt thank you to Hannah (Mama to Magnus' twin friends at Childspace), Westpac, and Canterbury West Coast Air Rescue team (Cameron, Wayne, Tom and the rest of the lovely team) for making it possible for Magnus to have a "playdate" with the rescue helicopters. He won't stop talking about it and loves his toy helicopter! It's bringing many injured and sick little figurines to the hospital. 😃 After our close up walk around, he saw 3 helicopters in action!

The day was lovely so we let it play out at the beach. 🌞

This week will be a big one again, with an ultrasound to his heart to confirm it'll be healthy enough to receive all the toxic medicine going forward, as well as the placement of the Hickman line into his chest. All these appointments still need to be confirmed.

We have privately organised a child therapy specialist who will use some play, stories and techniques to help him regain some sense of power over his body and to hopefully help him feel less anxious about upcoming procedures.

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Update from Christchurch

30 November 2024

Your messages give us strength and hope. Thank you so much for being part of his journey!

It’s been a rough week. Last Saturday, Magnus developed a high fever and had to spend 2 days in Wellington hospital. Thankfully, he recovered quickly.

On Tuesday we flew to Christchurch. Magnus was thrilled about staying at Ronald McDonald House; he adores the trampoline and big kitchen. However, hospital visits have been tough. He gets very upset about procedures, blood tests, and anaesthetic masks.

On Thursday, Magnus cried so hard before sedation that his nose bled. He had to fast from 9:30am to 4:30 pm. The team successfully inserted the IV line. The wait while he was sedated was hard. The MIBG scan team injected a radioactive substance to highlight any tumor cells during the scan on Friday, and Diana had to stay 2 meters away from Magnus for 48 hours to protect the unborn baby, which was very upsetting. When he woke up around 6:30pm, he immediately asked for food.

Friday’s big test made Magnus very nervous. We walked around the botanical gardens to distract him. He had to fast from 7am until 1pm. The MIBG scan lasted over 2 hours. When he woke up around 3pm he asked for cherries and ate until late at night. That wasn’t the end of his day. Blood tests showed low platelets and hemoglobin, requiring a blood transfusion, which took 5 hours. We finally returned to the Ronald McDonald House around 10pm.

We hope for a relaxed weekend without tricky surprises to catch our breath again.

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An note of thanks from Diana

25 November 2024

We want to express our deepest gratitude to all the lovely people who care so much for our little son. We are overwhelmed from all the outpour of love, kindness and encouragement that we have received in the past 5 days from family, friends, our community and people we haven't met. We're reading through all the comments and they bring us to tears of hope and gratitude. All the energy, prayers, love, best wishes and contributions that you send him will make a huge difference.

This page was set up by our lovely daycare, and "give-a-little" only allows one admin per page so please forgive us that we can't respond to each of your messages individually.