Your messages give us strength and hope. Thank you so much for being part of his journey!
It’s been a rough week. Last Saturday, Magnus developed a high fever and had to spend 2 days in Wellington hospital. Thankfully, he recovered quickly.
On Tuesday we flew to Christchurch. Magnus was thrilled about staying at Ronald McDonald House; he adores the trampoline and big kitchen. However, hospital visits have been tough. He gets very upset about procedures, blood tests, and anaesthetic masks.
On Thursday, Magnus cried so hard before sedation that his nose bled. He had to fast from 9:30am to 4:30 pm. The team successfully inserted the IV line. The wait while he was sedated was hard. The MIBG scan team injected a radioactive substance to highlight any tumor cells during the scan on Friday, and Diana had to stay 2 meters away from Magnus for 48 hours to protect the unborn baby, which was very upsetting. When he woke up around 6:30pm, he immediately asked for food.
Friday’s big test made Magnus very nervous. We walked around the botanical gardens to distract him. He had to fast from 7am until 1pm. The MIBG scan lasted over 2 hours. When he woke up around 3pm he asked for cherries and ate until late at night. That wasn’t the end of his day. Blood tests showed low platelets and hemoglobin, requiring a blood transfusion, which took 5 hours. We finally returned to the Ronald McDonald House around 10pm.
We hope for a relaxed weekend without tricky surprises to catch our breath again.