Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
Wellington
Magnus is a super happy, bubbly 3 year old that has just become a big brother with a life time of dreams ahead of him, when in October 2024, his family was delivered the devastating news that he has a 9cm neuroblastoma growing from his right kidney area which has spread to other areas of his body.
This amazing family are now navigating the fact that their toddler has stage four neuroblastoma which is an aggressive and rare form of childhood cancer, 38% survival rate. After the latest scans, his prognosis for survival has dropped.
Treatments here in NZ include, intensive chemo, radiation therapy, stem cell transplants, surgery and immuno therapy. Generally all these treatments can have severe and long lasting side effects which can include hearing or vision loss, organ damage, or developing secondary cancers or leukemia at any time.
Magnus and his family want to be able to explore new treatment options from overseas, additional to treatment available in New Zealand, so he will have a better chance at survival and recovery. They also need to manage the day to day that brings additional costs due to his disease and they want to be able to buy products for Magnus that will enhance his comfort and recovery.
Please help us wrap around this family and give Magnus the opportunity to grow up to be the big brother that he deserves to be.
We are the Childspace community that surround Magnus and his whānau.
The money will be used to be able to afford the best available overseas treatment, drugs and technology. This includes surgery, proton therapy and immunotherapy (Naxitamab), as well as products to ease Magnus’ pain and enhance his recovery.
Making memories and navigating the rollercoaster 23 November 2025
We’ve had to make tough decisions lately. A few weeks ago we hit rock bottom. But the last couple of weeks have brought some ups. Fortunately we have family supporting us.
The tumor is growing fast, with big bumps on his head. Thanks to donations, we managed second opinions and a novel US blood test that took six weeks. It revealed an aggressive new mutation. The good news: there’s an oral drug that targets it. The hard part: it may work, or not, and resistance can appear overnight. We’re watching closely.
The tumor invaded his eye socket, covering most of it before radiation. He’s blind on the left side. If you saw him move, you’d never know. Children are stronger than adults in so many ways. We’re so proud of him.
He struggled with headaches, nausea, and emotions. He lost a lot of weight. Now with the new drug we have to slow him down from eating.
Ten days ago in Christchurch, Magnus mastered another anaesthetic and CT scan and had radiation across most of his head. He was a champ.
He’s thrilled his Hickman line is gone — no more chemo — and back to playing wildly with water. His big wish was to climb a coconut tree like in Moana, so we flew to the Gold Coast and made memories. If not in bed, he was in the water or exploring. Meanwhile, our Childspace community worked magic in our garden.
From our hearts, thank you to everyone who donated and/or helped us make these memories. We’re still fighting for him, making life as joyful as we can. Right now, he's doing well.
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