Update
15 May 2023Thank you to everyone that has supported and is supporting us we are forever grateful 🙏. Today we had a day of scans we are still waiting for an appointment with the specialist but Bronson did a few extra scans to send to the neurologist and I think maybe for genetic testing? Not entirely sure but it's on the cards to get done to see if he qualifies for this Von Hipple syndrome. He has been going back to school for full days and doing well with recovery he is still waiting to be cleared for any sort of physical activity he is missing that and he is eating a bit more now too. It's still up and down but he is improving 😀