4 weeks in
26 February 2020Update from Rochelle- 4 weeks since we first presented to hospital - a period of time that I seriously thought would never happen to me - appreciating all the long hours and hard work the nurses and doctors put in and the relationships u build with complete strangers. The people’s shoulders you cry on and the people that can make you tear up just by looking at you.
Last week Mackenzie went down hill again, uncomfortable and spasmy at night mostly with minimal sleep for everybody. She has had some more IVIG on Friday and Saturday which is just starting to kick in and she is much more comfortable again - she can have IVIG every 2-3 weeks if she plateaus or gets worse.
Some days are harder than others but the smile just keeps us positive and pushing forward 🥰