Support for our loved & sweet Landon

Our beautiful boy Landon has recently been diagnosed with an ultra-rare genetic disorder called Infantile Neuroaxonal Dystrophy (INAD). It’s a heartbreaking and devastating diagnosis, as INAD is currently a terminal condition with no known cure or treatment.

While this news has been incredibly hard to process, we are focusing on surrounding Landon with all the love, joy, and beautiful memories we can create—every single day. INAD does not define who Landon is. He is still our happy, giggly little boy who loves life, and we’re doing everything we can to keep his world full of light.

As you can imagine, this journey is emotionally and financially overwhelming. Alex and Bailey are incredible parents, soon to welcome a new addition to their family, all while processing Landon’s devastating diagnosis. This news has deeply affected their entire whānau, and the road ahead will be filled with challenges. They’ll need all the support they can get to navigate the coming months—whether that’s through donations, kind words, or simply sharing their story.

If you’re looking to learn more about INAD, the INADcure Foundation is a wonderful place to start. They are working tirelessly towards finding a treatment and are closer than ever to beginning clinical trials. Any support for their mission brings hope to Landon and other children like him.

From the bottom of our hearts—thank you for being here, for reading, and for caring.